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  1. C

    Suitable work

    i found working at a more physical job to be more satisfying. warehouse, type work, loading, unloading, sorting, and minimal groups of people so the coughing isnt a bit deal. it's hard to find long term stuff, especially if you miss a lot for hospitalization. you might try going through a...
  2. C

    Intense pain in upper back...?

    there is a breathing muscle attached to the scapula and ribs call seratus (not sure of spelling) my soft tissue physical therapist is constantly having to unknot it. if you dont have a phyiscal therapist a massage therapist might be able to get it for you if they know what to look for. it does...
  3. C

    Intense pain in upper back...?

    there is a breathing muscle attached to the scapula and ribs call seratus (not sure of spelling) my soft tissue physical therapist is constantly having to unknot it. if you dont have a phyiscal therapist a massage therapist might be able to get it for you if they know what to look for. it does...
  4. C

    cfrd/impaired glucose tolerance

    you can probably manage with diet and exercise if you are diligent about checking your sugars. sometimes abx or steroids can bump your numbers up. if your A1c, the long term blood sugar "score" was also high then may be able to use the oral meds they have now. my care team tried to have me on...
  5. C

    cfrd/impaired glucose tolerance

    you can probably manage with diet and exercise if you are diligent about checking your sugars. sometimes abx or steroids can bump your numbers up. if your A1c, the long term blood sugar "score" was also high then may be able to use the oral meds they have now. my care team tried to have me on...
  6. C

    sluggish liver

    here's a tale that ends well but a long painful journey...i started having gall bladder "attacks" when i was 18. they didnt happen at the right time until i was in my mid 30's so no one figured it out. i had my gall bladder removed but still had liver enzymes out of whack. i was put to...
  7. C

    sluggish liver

    here's a tale that ends well but a long painful journey...i started having gall bladder "attacks" when i was 18. they didnt happen at the right time until i was in my mid 30's so no one figured it out. i had my gall bladder removed but still had liver enzymes out of whack. i was put to...
  8. C

    Enzyme Change...not really working

    ah, the joy of enzyme changes, NOT! i was on ultrase mt20's for years. randomly changed from mt12's at some point by my care team. i did ok with them but felt they were "too strong" since 1 often gave me symptoms like you are experiencing so i skipped all together. zenpep absolutely did not...
  9. C

    Enzyme Change...not really working

    ah, the joy of enzyme changes, NOT! i was on ultrase mt20's for years. randomly changed from mt12's at some point by my care team. i did ok with them but felt they were "too strong" since 1 often gave me symptoms like you are experiencing so i skipped all together. zenpep absolutely did not...
  10. C

    Menstrual Cycle changes?

    i have not had twice a month problems, but for about 8 straight months my lungs seemed to be competing with my uterus. it even happened on the day i was getting discharged from a tuneup. the hemoptysis would stop within 36 hours, but we never figured out why it was happening. other than my...
  11. C

    Menstrual Cycle changes?

    i have not had twice a month problems, but for about 8 straight months my lungs seemed to be competing with my uterus. it even happened on the day i was getting discharged from a tuneup. the hemoptysis would stop within 36 hours, but we never figured out why it was happening. other than my...
  12. C

    CFers over 40

    i turned 44 in oct 2011, diagnosed at age 4, failure to thrive. ironically, now my doc tells me i need to lose some weight at my whopping 135 (5'2"). (the first doc i had at my current care center wanted me to go on an all mcdonalds diet to gain weight. i weighed 115, 6 years ago, coming off...
  13. C

    CFers over 40

    i turned 44 in oct 2011, diagnosed at age 4, failure to thrive. ironically, now my doc tells me i need to lose some weight at my whopping 135 (5'2"). (the first doc i had at my current care center wanted me to go on an all mcdonalds diet to gain weight. i weighed 115, 6 years ago, coming off...
  14. C

    Need help, at a loss

    you dont list where you are located but i would find another care center immediately! the cff.org site lists all the accredited and satellite centers in the whole country. you know your body better than anyone and need to fight to keep yourself as healthy as you can. i hope you have a support...
  15. C

    Need help, at a loss

    you dont list where you are located but i would find another care center immediately! the cff.org site lists all the accredited and satellite centers in the whole country. you know your body better than anyone and need to fight to keep yourself as healthy as you can. i hope you have a support...
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