Search results

We got the blood test results today. It wasn't what we were hopping for, but at least now we know why Klaudia doesn't gain weight. Testing method: PCR and OLA. Results: compound heterozygous Gene mutations: Delta 508 and N1303K. This is a question that everyone asks at this point. What does...

We got Klaudia's saliva tests results today and they were fine. Waiting for the blood tests' results. In the mean time Klaudia will be fed every 3 hours. During her 4th to 5th month she was fed whenever she cried. I read that the sweat test may come out high if the person is malnutritioned...

We got Klaudia's saliva tests results today and they were fine. Waiting for the blood tests' results. In the mean time Klaudia will be fed every 3 hours. During her 4th to 5th month she was fed whenever she cried. I read that the sweat test may come out high if the person is malnutritioned...

We got Klaudia's saliva tests results today and they were fine. Waiting for the blood tests' results. In the mean time Klaudia will be fed every 3 hours. During her 4th to 5th month she was fed whenever she cried. I read that the sweat test may come out high if the person is malnutritioned...

I need to add: Klaudia is still being breast fed and she drinks often. My sister told me that until she was 4 months old she was being fed on certain times of the day. Now she's being fed more often without any "time table". My sis also told me that she started weighting Klaudia before and...

I need to add: Klaudia is still being breast fed and she drinks often. My sister told me that until she was 4 months old she was being fed on certain times of the day. Now she's being fed more often without any "time table". My sis also told me that she started weighting Klaudia before and...

I need to add: Klaudia is still being breast fed and she drinks often. My sister told me that until she was 4 months old she was being fed on certain times of the day. Now she's being fed more often without any "time table". My sis also told me that she started weighting Klaudia before and...

Hi Samsmom! Thank you for your reply. Is Ambry this company? They say that the blood sample can stay maximum 2 day at room temps. I live in Europe so I don't think there's anyway I can send my niece's blood sample to them withing 2 days. When we receive the results from the Albanian...

Hi Samsmom! Thank you for your reply. Is Ambry this company? They say that the blood sample can stay maximum 2 day at room temps. I live in Europe so I don't think there's anyway I can send my niece's blood sample to them withing 2 days. When we receive the results from the Albanian...

Hi Samsmom! Thank you for your reply. Is Ambry this company? They say that the blood sample can stay maximum 2 day at room temps. I live in Europe so I don't think there's anyway I can send my niece's blood sample to them withing 2 days. When we receive the results from the Albanian...

Greetings from Albania, South Europe! First of all I would like to congratulate you all for your incredible strength, determination and will. My niece, a beautiful 5 months old girl named Klaudia, was diagnosed yesterday with possible CF. She hasn't gained the weight she should have so my...

Greetings from Albania, South Europe! First of all I would like to congratulate you all for your incredible strength, determination and will. My niece, a beautiful 5 months old girl named Klaudia, was diagnosed yesterday with possible CF. She hasn't gained the weight she should have so my...

Greetings from Albania, South Europe! First of all I would like to congratulate you all for your incredible strength, determination and will. My niece, a beautiful 5 months old girl named Klaudia, was diagnosed yesterday with possible CF. She hasn't gained the weight she should have so my...