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    looking for cf pals

    Im 23 pre lung and liver transplant. Listed in Toronto, Ontario, Canada. also have CFRD. Email is dresapp@hotmail.com for those who are interested.
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    When do you tell....

    I usually casually mention it when i first meet them if we really hit it off or the first date or two. I like to be upfront about. I dont make a big deal of it but i figure if they cant deal with it or the act funny about it in the beginning than the relationship isnt worth persuing and no one...
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    Transplant...

    I am listed for double lungs and liver at Toronto GH. Ive been listed since July of 2004. Kris
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    Fear and hard choices

    I am 23, I have CF and I need a lung and liver transplant because of My CF. While I agree that CF can be difficult, it also has made who I am. I have still done some great things in my life that I wouldnt trade for anything. I love my life regardless and my parents raised 2 children with CF...
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    The hardest thing

    I would say that the hardest time is now for me. Im 23 and I need a lung and liver transplant. I am no longer able to do much of the things i love and it hurts. Also because of my liver disease I have a huge spleen and water retention so I look pregnant and Ive had strangers ask me all the...
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    When were you dignosed with CF?

    I was dx at birth. I have an older sister with CF so I was tested right away. I am now 23 and waiting for a lung and liver transplant. I also have diabetes. Kris
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    cfrd

    Hi there Im 23 and I have diabetes. I was diagnosed at 12. I take NPH 2 x a day and humalog as needed during the day. My sugars bounce around alot too. Im high than a few hours later Ill have a massive low. Because ppl with CF often have infections it causes sugars to go out of whack. Thats...
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    Dying

    Death doesnt scare me, its getting there that hurts! Im afraid of the discomfort and struggle that you have to endure(if CF kills you). Im also afraid for my family and friends. What will they do without me? How will they handle it? I dont have children but I have a horse and dog that are...
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    what if they find a cure!

    I think a cure will be found or possibly a treatment but I think it will first start with correcting it through an unborn child or CF carriers. I doubt I will be cured as Im listed for transplant and a cure wouldnt help me really anyway If i get transplanted. I dont think there will a "magic...
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    Teeth

    my teeth are nasty too. Always have been. Since I was a kid i have cavities like crazy. one dentist even got sick of me and suggested i go to another dentsist because she was getting frustrated with me!! Even now my teeth are terrible. They chip and and crumble when the dentist starts drilling...
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    working mom of a cf child

    Well im not a mom but im a cfer and both of my parents worked full time my whole child hood and i turned out fine as did my sister who also has CF. You do what you have to do. I think its more important that you are willing to get up earlier to do you childs treatments and make sure they are...
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    what would you do??

    Im not sure what I would do if I knew there was a chance at having a CF baby. I had this discussion with a doctor once. I would never wish this disease on someone or want to contribute to giving it to someone but I am glad Im here and that my parents had me. It has shaped who I am for the...
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    Finding Friends with CF

    Do you go to a CF clinic or center. I do and everyone who isnt cepacia positive or has any other transferable infection sit in the same waiting room and ive met some great ppl this way. We also have a local CF chapter and support groups. All they ask is if you are sick to wear a mask and keep...
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    Finding Friends with CF

    Do you go to a CF clinic or center. I do and everyone who isnt cepacia positive or has any other transferable infection sit in the same waiting room and ive met some great ppl this way. We also have a local CF chapter and support groups. All they ask is if you are sick to wear a mask and keep...
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    Glutathione

    What exactly is this stuff you are talking about?? Never heard of it. Im from Canada. Not sure if anyone uses it here. I would like more info.. Is it a CF drug or something? Thanks Kris/22f pre lung and liver transplant
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    Muscle/Joint aches & pains

    I have the same problems but with my back and neck as well. Adults with CF are prone to getting a type of osteoarthritis. It is caused from low bone density which can be detected with a bone scan. Most CF centers here in Canada do them to check. Because of the malabsorbtion problems, we may...
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    I read this book and...............

    Try AMAZON.COM for books. Ive had alot of success finding hard to get books there. I bought "Breathing for a living" by Laura Rothenburg fairly cheap through them. It is well used but readable. I would be willing to sell it to someone fairly cheap if anyone is interested. Maybe just for the...
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    Dizzy Spells?

    I agree you should see about being tested for diabetes. After you eat your blood sugar rises and that could be causing you the dizziness especially if you just ate something high in sugar!(natural or artifical) Good luck
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    Is this odd?

    I think it depends on the kind of enzymes she is on. If she is on a low dose enzyme like cotazym and her needs are more than she would have to take alot. My sister takes cotazym but Im on Creon 25 and I take about 4-5 with meals. If i took my sisters enzymes id need like 10!! So I would ask...
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    Lung Transplant Testing

    My assesment took 4 days. Most of the tests were xrays and scans so they dont hurt or anything. I also had to do Pulmondary Function Testing , that was a little exhausting. I also had to do a test where I had to lay down and peddle, bike pedals for like 10 min as fast i could to test my heart...
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