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I agree you cant say how long he will live. And if he gets really bad than he may be considered for lung transplantation. Im listed right now and Im 22. My sister who also has CF was on IV antioboitcs for about 15 years of her life every 3 months. She finally had a central line put in...

ASHLEY!!! I live about 45 minutes north of Kitchener. Do you go to the CF clinic at Grand River?? I do, my doc is DR. JACKSON. I was born in K town as well. Email me........dresapp@hotmail.com Im currently waiting for transplant...I started this thread Im so happy that this thread got so...

I too would see if something else is making him "push you away" I myself am guilty of using my CF to break up with a guy. Im not saying this is the case and I hope it isnt but I think you should have a serious talk with your BF and see just what is bothering him and work it out together. If...

There have been several threads on this topic. Go back a few pages and check them out. As for meds there isnt alot you can take but I am on Vit. K because I have a blood clotting problem and it seems to have helped minimize my bleeding. I used to wake up choking on blood all the time. It...

I was diagnosed right away. My older sister had CF and her CF doc diagnosed it. Apparently the first thing he did was lick my face!! It was salty so he said yes i probably have CF but I also had a formal test done. That doc was really over the top and I never went back to him becasue of his...

I thought I would start a new topic where we can get to know eachother better, Ill start..... My name is Kris(Kristy) and Im 22. I am from ontario, Canada. I have CF and CFRD and Liver disease. I am waiting for a lung and liver transplant right now. I am engaged but now sure when Ill be...

I hate this disease with a passion. I hate what it has done to me and the people I know or knew with it. However it has shaped who i am and im grateful for what it has taught me. Luckily it brought my family closer together since my sis and I both have it. I have met some incredible people...

Just because he doesnt wanna get married doesnt mean he doesnt love you and it doesnt mean your "wasting" your time. Maybe the reality of being married scares him. I know it does me and I have CF and im the one whos afraid to commit to my boyfriend! BUt I still love him and cant imagine being...

My sister who has CF also has had numerous sinus surgeries. She has polyps from CF and usually once a year she has to get them "scraped" as she says. She gets terrible headaches and pressure from them. SHe had a lung transplant 4 years a ago but she still has the sinus problems. One surgery...

Hi Ive never had this done but I do break a lot of blood vessels and have a had a few large bleeds. The topic came up but my CF doc and Transplant Doc said that they generally only do this in an emergency situation such as if you came into the hospital with a large bleed and they couldnt stop...

Hi I have severe back pain. Its the middle and lower back from coughing. I have strained all the muscles in my back. Its so bad that im on tylonel 3's and percaset for pain or i cannot move or function. I cant get comfortable and its always there. Massage helps but because Im always...

Getting stuck with IV's and needles is by far less painful than not being able to breath and feeling really crappy beyond what you can imagine if you dont take the drugs. I would love if there were natural ways to combat it but Ill tell you through experience, the "tune ups" are worth it when...

Yes its called ACID REFLUX. Its very common in Cfers. Talk to your doctor and they can give you something for it. Usually Ranitadine(zantac).

hi I used to bleed a lot too. I would wake up drowning in my own blood or sometimes from excersise or my passion, horseback riding would cause it. I had one major bleed where I was at a dance and basically covered the bathroom stall. I had to be taken out of there by ambulance. I was sooo...

I am also listed for transplant but I also need a liver and pancreas. Im listed for all three. My lungs arent as bad as they should be for xplant but because my liver is sooo bad, they want to do it all. My liver disease is CF related. They figure my chances are better with new lungs as...

I am also listed for transplant but I also need a liver and pancreas. Im listed for all three. My lungs arent as bad as they should be for xplant but because my liver is sooo bad, they want to do it all. My liver disease is CF related. They figure my chances are better with new lungs as...

I think the difference between dying from CF and "being hit by a bus" is that with CF you are constantly struggling for your life everyday for years and its usually a gradual and very uncomfortable death. Its not instant and painless. Ofcourse when you face that reality it much different. Hey...

I think the difference between dying from CF and "being hit by a bus" is that with CF you are constantly struggling for your life everyday for years and its usually a gradual and very uncomfortable death. Its not instant and painless. Ofcourse when you face that reality it much different. Hey...

Hi there, im 22f with CF and related liver disease and diabetes. I am in serious relationship and am engaged. I am also waiting for a multi organ transplant(lungs,liver and pancrease). I think the most important thing is finding a mate who understands or is willing to understand your daily...

Hi there, im 22f with CF and related liver disease and diabetes. I am in serious relationship and am engaged. I am also waiting for a multi organ transplant(lungs,liver and pancrease). I think the most important thing is finding a mate who understands or is willing to understand your daily...