I just talked to the nurse at the clinic, she said that she will let the Dr know and they will call us back. The only thing with our CF clinic is, is that they only do CF on Thursdays and they are 200 miles away. But, we'll see. How do they do a sputum culture on a 9 month old. I seriously doubt...
My 9 month old son has been coughing a lot lately. For the last 2 days he coughs to the point of throwing up. It takes him hours to fall asleep at night, because he just lays there and coughs and pukes. We have a clinic appoitment on Thursday. Does this sounds like he may have the psuedomonas? I...
Congrats on your little angel. Welcome to the board. I think that you will find yourself at home here. Everyone is so wonderful. Any questions you may have, someone here has an answer. I am looking forward to hearing more about your son.
I guess my problem comes from being a single mom. I don't have that other half of the support system. Their father does live in town, but in 2 weeks, he will be moving about 3 hours away. He isn't any help anyway. Right now I am unable to work because my son is on a continous feed of 22 hours a...
Just a little update. Evan's dietician came to our home today and weighed him. He weighed in at 11 pounds 10 ounces. I couldn't believe it. I was going to be thrilled if he was 11 pounds. He was weigh last on the 26th of July and he was 10 pounds 10 ounces. I think my jaw hit the floor. I think...
My son's problem was that he wasn't growing. AT ALL. So he was hospitalized and diagnosed with CF. We started going to a wonderful CF doctor in Spokane Washington. We live about 150 miles from there. We were seeing him weekly. Nothing that we tried worked. My son still didn't grow. We were...
I was wondering... Those of you that have little CFers. Are you able to work? If so who takes care of your child? I haven't been back to work since my son was born. He is now a little over 9 months old. I am a single mom and I do not have any family that can take care of him. They all work, and...
The father of my son is not a carrier to CF. Of course his first thought was that he wasn't the father, but he is. After extensive genetics testing they found out that my son's #7 chromosomes (which is the one that CF comes from) are identicle. They both came from me. We were told by his...
Hi everyone. I have made a few anonymous posts on here, but I finally decided to get a name and sign in. I just wanted to say hello to everyone. I have a 9 month old son who was diagnosed with CF on Februaty 14, 2005. He was 3 1/2 months old at the time. He was hospitalized with FTT and poor...
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