Search results

  1. N

    traveling with meds

    Thanks everyone! I did call the doc and they're sending a list of meds. I'm worried about taking the vest... think we might go back to the hand percussions (SP?) for the few days we'll be gone. My MIL sent a link showing a small case often used to keep insulin cold while traveling. HAs...
  2. N

    traveling with meds

    Thanks everyone! I did call the doc and they're sending a list of meds. I'm worried about taking the vest... think we might go back to the hand percussions (SP?) for the few days we'll be gone. My MIL sent a link showing a small case often used to keep insulin cold while traveling. HAs...
  3. N

    traveling with meds

    Thanks everyone! I did call the doc and they're sending a list of meds. I'm worried about taking the vest... think we might go back to the hand percussions (SP?) for the few days we'll be gone. My MIL sent a link showing a small case often used to keep insulin cold while traveling. HAs...
  4. N

    traveling with meds

    We're going to be traveling over Thanksgiving for the first time with all of my daughter's meds. Any suggestions on how to keep her pulmozyme cold and get it through security without being x-rayed? We're trying to take all her treatment meds and equipment as carry on, but I've been worried...
  5. N

    traveling with meds

    We're going to be traveling over Thanksgiving for the first time with all of my daughter's meds. Any suggestions on how to keep her pulmozyme cold and get it through security without being x-rayed? We're trying to take all her treatment meds and equipment as carry on, but I've been worried...
  6. N

    traveling with meds

    We're going to be traveling over Thanksgiving for the first time with all of my daughter's meds. Any suggestions on how to keep her pulmozyme cold and get it through security without being x-rayed? We're trying to take all her treatment meds and equipment as carry on, but I've been worried...
  7. N

    thirsty from HTS?

    Hi, my daughter just started on HTS a few weeks ago and I've noticed lately that she's complaining of being thirsty alot.... she'll down a whole sippy cup and want more to drink. Has anyone else noticed this with the HTS or should I think about getting her tested for diabeties? She's been on...
  8. N

    thirsty from HTS?

    Hi, my daughter just started on HTS a few weeks ago and I've noticed lately that she's complaining of being thirsty alot.... she'll down a whole sippy cup and want more to drink. Has anyone else noticed this with the HTS or should I think about getting her tested for diabeties? She's been on...
  9. N

    thirsty from HTS?

    Hi, my daughter just started on HTS a few weeks ago and I've noticed lately that she's complaining of being thirsty alot.... she'll down a whole sippy cup and want more to drink. Has anyone else noticed this with the HTS or should I think about getting her tested for diabeties? She's been on...
  10. N

    thirsty from HTS?

    Hi, my daughter just started on HTS a few weeks ago and I've noticed lately that she's complaining of being thirsty alot.... she'll down a whole sippy cup and want more to drink. Has anyone else noticed this with the HTS or should I think about getting her tested for diabeties? She's been on...
  11. N

    thirsty from HTS?

    Hi, <br />my daughter just started on HTS a few weeks ago and I've noticed lately that she's complaining of being thirsty alot.... she'll down a whole sippy cup and want more to drink. Has anyone else noticed this with the HTS or should I think about getting her tested for diabeties? She's...
  12. N

    newborn diagnosed

    Thanks for all the replies. I am feeling a bit better about the situation already. It's been wonderful to hear from so many of you who either live with CF or who have older children with CF. it really does give me hope that she really can have a long happy life. For a couple of you who...
  13. N

    newborn diagnosed

    Thanks for all the replies. I am feeling a bit better about the situation already. It's been wonderful to hear from so many of you who either live with CF or who have older children with CF. it really does give me hope that she really can have a long happy life. For a couple of you who...
  14. N

    newborn diagnosed

    Thanks for all the replies. I am feeling a bit better about the situation already. It's been wonderful to hear from so many of you who either live with CF or who have older children with CF. it really does give me hope that she really can have a long happy life. For a couple of you who...
  15. N

    newborn diagnosed

    Help! <img src="i/expressions/brokenheart.gif" border="0">My 7 week old daughter was just diagnosed with CF. She has had no symptoms but the abnormal gene showed up on a standard test at birth... so we proceeded with the recommend sweat test. Her first test was invalid... at only 2 weeks she...
  16. N

    newborn diagnosed

    Help! <img src="i/expressions/brokenheart.gif" border="0">My 7 week old daughter was just diagnosed with CF. She has had no symptoms but the abnormal gene showed up on a standard test at birth... so we proceeded with the recommend sweat test. Her first test was invalid... at only 2 weeks she...
  17. N

    newborn diagnosed

    Help! <img src="i/expressions/brokenheart.gif" border="0">My 7 week old daughter was just diagnosed with CF. She has had no symptoms but the abnormal gene showed up on a standard test at birth... so we proceeded with the recommend sweat test. Her first test was invalid... at only 2 weeks she...
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