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    Tracking family CF

    My parents have never been tested but I know I am a carrier of one gene mutation and my brother is a carrier of another(V754M). My daughter is positive with D-F508 and S492F. As for the rest of my family (sisters, aunts, neices, nefews and cousins) don't think they should (or don't want to)...
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    Tracking family CF

    My parents have never been tested but I know I am a carrier of one gene mutation and my brother is a carrier of another(V754M). My daughter is positive with D-F508 and S492F. As for the rest of my family (sisters, aunts, neices, nefews and cousins) don't think they should (or don't want to)...
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    BLOG PROBLEMS

    I can't scroll down either and I want to know what the school nurse says.
  4. G

    BLOG PROBLEMS

    I can't scroll down either and I want to know what the school nurse says.
  5. G

    BLOG PROBLEMS

    I can't scroll down either and I want to know what the school nurse says.
  6. G

    joshua's dad

    Patrick, This is a very difficult time for you and I know it is difficult for all of us who have had to face cf. I found out my daughter has cf about a year ago. You do have to adjust to meds and therapy and in time it will become part of life. This experience has made me a more understanding...
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    joshua's dad

    Patrick, This is a very difficult time for you and I know it is difficult for all of us who have had to face cf. I found out my daughter has cf about a year ago. You do have to adjust to meds and therapy and in time it will become part of life. This experience has made me a more understanding...
  8. G

    joshua's dad

    Patrick, This is a very difficult time for you and I know it is difficult for all of us who have had to face cf. I found out my daughter has cf about a year ago. You do have to adjust to meds and therapy and in time it will become part of life. This experience has made me a more understanding...
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    Sit with me

    I am going to respond to my own thread now that I had a chance to hear from all of you. We are very lucky at this point in time because we don't have to do nebs. Sitting with Sheila during therapy has become part of our lives as well as hers. We do take turns and there are times when we play...
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    Sit with me

    I am going to respond to my own thread now that I had a chance to hear from all of you. We are very lucky at this point in time because we don't have to do nebs. Sitting with Sheila during therapy has become part of our lives as well as hers. We do take turns and there are times when we play...
  11. G

    Sit with me

    I am going to respond to my own thread now that I had a chance to hear from all of you. We are very lucky at this point in time because we don't have to do nebs. Sitting with Sheila during therapy has become part of our lives as well as hers. We do take turns and there are times when we play...
  12. G

    Sit with me

    When it's time to do vest therapy, the first thing I hear is will you sit with me? Most of the time that's ok, no problem. It is difficult to sit through every therapy and it makes me feel bad when I can't. Sometimes it even leads to a meltdown because I cannot sit through the full 30 mins...
  13. G

    Sit with me

    When it's time to do vest therapy, the first thing I hear is will you sit with me? Most of the time that's ok, no problem. It is difficult to sit through every therapy and it makes me feel bad when I can't. Sometimes it even leads to a meltdown because I cannot sit through the full 30 mins...
  14. G

    Sit with me

    When it's time to do vest therapy, the first thing I hear is will you sit with me? Most of the time that's ok, no problem. It is difficult to sit through every therapy and it makes me feel bad when I can't. Sometimes it even leads to a meltdown because I cannot sit through the full 30 mins...
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    cf centers

    We go to Primary Children's Hospital in Salt Lake City. It's about 30 minutes and it's the only CF Clinic that I know of around here.
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    cf centers

    We go to Primary Children's Hospital in Salt Lake City. It's about 30 minutes and it's the only CF Clinic that I know of around here.
  17. G

    cf centers

    We go to Primary Children's Hospital in Salt Lake City. It's about 30 minutes and it's the only CF Clinic that I know of around here.
  18. G

    Welcome Ambry Genetics

    Steve, My brother just got his Ambry test back and it shows that he is a carrier of V754M(same parents). I am a carrier of S492F and my wife is Df508. I was wondering if you have any insight about this (V754M) mutation. Thanks.
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    Ab pain and the vest

    Does anyone know what might cause abdominal pain (cramps) during vest therapy?
  20. G

    Ab pain and the vest

    Does anyone know what might cause abdominal pain (cramps) during vest therapy?
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