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Symptoms: sudden weight loss, fainting, tingly feeling in limbs, brown spots on skin. They are not yet treating it effectively. It was diagnosed based on low cortisol levels.

Have any of you CFers developed Adrenal Insufficiency? My DS appears to have, probably from too many steroid medications. I would love to hear about the CF experience with this, including if it resolved with treatment.

Hi Luna, My sons both have one unknown mutation -- So it does happen sometimes. They were both diagnosed on sweat tests +symptoms. Good luck in your search.

Thanks Jricci -- very helpful.

Thanks!!! Does anyone know -- if a student receives one CF scholarship (for, let's say, $1000), is it considered inappropriate to try to double up and apply for another?

If it were my child I really wouldn't abide by the idea of no PFTs because "they know they'll be low". I mean when a child goes to the doctor with a fever, do they say we are not going to take the temp because we know it will be high? That is a ridiculous stance. I'd suggest going to another...

Sorry to keep asking questions that may have been answered with other threads, but what are her PFTs like? Do they go down when she has an infection? To say more, both my sons were diagnosed on the basis of sweat chloride, in the absence of support genetics. They each have one CF allele...

I was wondering, was you daughter given a sweat chloride test at a CF-center? If so, how did it come out? My sons are diagnosed based on sweat chloride, not genetics.