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I had similar experience. My docs suggested I increase my Flovent and ventolin. Since then I've switched to Pulmicort. So my regimen is: 2 ventolin, 28mg tobi, 2 symbicort, 3 pulmicort and then 2 more ventolin. So I've added one inhalation of pulmicort and 2 ventolin and it solved the problem...

Thanks, I really enjoyed this

How often and when do you do your sinus rinse? I usually do mine at night when I have a shower. Im starting to find that my ears and throat are becoming irritated since I sleep shortly afterward. Do you drain your sinuses after you do your rinse? How is this supposed to work?

Potentially relevant, maybe not. I've had numbness in my LEFT arm, blurred and tunnel vision, and my speech was slurred. I went to emerg as well. I forgot where it was. While I was there the symptoms worsened. I was told I was having a migraine. Couldn't believe it. You have several more...

I'm on the podhaler. I've never been on any other form of tobi. I have an asthmatic component to my CF. I upped my dosage of Flovent and ventolin with the podhaler to deal with the side effects.

I do have an asthmatic component. I think that's what's happening here. I'm definitely not sick. I think I'm just reacting to this amazing drug that could be so helpful! Very frustrating.

Hi, So I started taking Pulmozyme a week and a half ago. From what I've been told, I am to do physio about 30 minutes after. I half assed the physio on Sunday because I was going to the gym. I thought I'd make it to the gym within 30 minutes but it was more like N hour. I did my workout and...

Hi everyone, I was told that I can boil the... Geeze I don't even know the terminology. I was told that I can boil my nebulizer (The thing I put my pulmozyme in) for 10 minutes "at a rolling boil". I swear I've completely deformed it. The lid doesn't close all the way. I noticed this so I...

Thanks for all your input everyone. I really appreciate it. I was stressing about the weight limit and fitting everything into my little carry on! I just bought my compressor today. 7lbs!

Hi ladies, Just wondering if you get yeast infections from taking zithro 3x a week (the Mon, Wed, Fri method 2 pills a day). Thanks for your input!

So I am traveling from Canada, driving to Buffalo, flying to Philadelphia, then flying about 4 hours to a tropical island :o). Since we have a stop over, to avoid the hassle, we are only bringing carry-ons. In addition to my clothes, I need to bring my meds (not a problem they can all fit in my...

Lifeisgood - I just want to say THANK you for your post. I'm having a difficult time right now, mentally. I feel paralyzed with fear of the future after losing my brother to CF. Your words were much needed.

Has anyone here been pregnant on Itraconazol/Sporanox? Just wondering if I will be able to have a healthy pregnancy/baby if I am on this drug. Thanks for any input!

I took Cipro for the first time in October. After 9 days my right upper arm/shoulder started hurting. I couldn't lift my arm up to brush my teeth. I called my doc & stopped taking it. The pain lasted about 2-3 weeks following. Not as severe AT ALL. But I could feel it so I tried to not use my...

Hi, I don't look up drug side effects because I don't like to subconsciously talk myself into experiencing them. I just finished a 14 day course of meropenem and ceftazidime. The front of my legs/shins are killing me!! Has anyone experienced this after these antibiotics?

Thanks for all this discussion. I really appreciate the fact that people with CF are so blunt. LOVE it. That's what my bro was good for. ChisDopher go read your message I sent you. You're too funny. Bill, you're blunt and I appreciate it. Hope you read my comment where I stated I was 16 when I...

Bill. Sounds like we are seen at the same clinic! Or a clinic with the exact same guidelines. These stories are horrific. I stay far away from anyone with CF period. My clinic gives us the option of going into a waiting room for 30 second while my nurse comes to get us. I just stand around and...

Thank you for all your replies. I did want to clarify one thing, I was 16, yes 16, when I met my SO. We started dating when I was 17. CF was quite literally NOT on my mind at this age. And who, at this age, thinks the relationship will last? Sorry, should have thrown this into perspective. If I...

I have CF. I've been hospitalized once. I've been with my significant other for several years. I believe I withheld the fact that I have CF at the beginning of the relationship because I was not affected by it, didnt think about it on a daily basis, didnt even take a puffer. I remember telling...

Oh boy. Unbelievable. Poor little guy.