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Thank you for posting this! Already sent an email, will also try to call.

http://www.npr.org/sections/health-shots/2017/06/21/532601431/survivors-of-childhood-diseases-struggle-to-find-care-as-adults

The Hypertonic saline is a good idea. Still haven't been able to get my daughter to come it into a cup either. Recently she had an exacerbation and I was trying to get her to cough into a specimen cup. She actually had a wet, productive cough at the time. I had her do an albuterol neb, then...

The eflow question is a good one. I think it is expensive, about $1000...As well as do you need one aerosol head for each medication? I guess I am not too informed on the eflow and not sure how it all works...

We have a Pari Vios for travel. It is just a terrible compressor for all my daughter's treatments. On a daily basis she does 8 nebs a day and we usually use the mobilaire at home(just not practical to bring for travel). It is stressful to not have a good compressor for travel; what do you all...

Now is the time to send emails, letters and call your senators if you do not want this passed through the senate.

Sent my letter; very easy to do. Thank you!

I am looking into this too. I wonder what the warrantee is? I forgot to ask.

It sounds like his is improving. Perhaps the antibiotics knocked back the extra irritation and mucus. As well as the steroid opening stuff up and decreasing inflammation. Keep it up with the nebs and airway clearance. Maybe there is nothing to cough up at this point. Which is a good thing...

I was wondering if a steroid would be in order. Prednisone really seems to help tamp the inflammation and open up the airway and let the stuff come up. It does tend to make my daughter emotional( typically she gets a 5 day burst) . We are also careful with her diet while on prednisone; avoid...

How is your little guy feeling? How is his cough? Hoping the IV's kick butt.

The figuring out the cough thing can be hard. Does your son use a bronchodilator before the Hypersal? That can help with the cough induced by the hypersal. I also have my daugher drink fluids after her hypersal; it seems to make her thirsty. My daughter's cough tends to be dry and fairly non...

Sometimes, when one with CF gets a cold or virus it gives it a medium for those bacteria to grow; like a petri dish. So yes if you have a staph bacteria and you get a cold you may need antibiotics for that to treat the bacteria. I did convince the covering doc to give my daughter one more...

Above, when my daughter was having GI issues a couple years ago I said the same thing except in reverse. I was so used to respiratory stuff and what to do but did not have a good plan about GI. Some is trial and error, unfortunately.

It is individual. I do echo; the cough petering out before antibiotics are done. If cough goes away and antibiotics are done, daughter usually feels better off anti's after 3 days...Being on antibiotics is exhausting in itself. I encourage lots of rest; may have to cancel extra after school...

Thank you, Gammaw. I have been boiling it after use. I was afraid it would melt or something but it did not. I boil for 10 minutes then airdry.

Thank you!

Could you put it in a WABI? Can you sterilize it?

http://www.npr.org/sections/health-shots/2017/03/23/521220359/gop-health-bill-changes-could-kill-protections-for-people-with-preexisting-condi

https://www.statnews.com/2017/03/10/workplace-wellness-genetic-testing/