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  1. V

    Replacing a mic-key button

    We changed Garran's out every 2 months at home. Super easy. Good News is that he has now gained enough and is maintaining it since Tx and we were given the go ahead to take it out! So aside from the titanium wires from the tx he is completely appliance free! He is so happy! Good luck with...
  2. V

    Replacing a mic-key button

    We changed Garran's out every 2 months at home. Super easy. <br /> <br />Good News is that he has now gained enough and is maintaining it since Tx and we were given the go ahead to take it out! <br /> <br />So aside from the titanium wires from the tx he is completely appliance free! He is...
  3. V

    Hyperactivity with CF Kids..anyone have this with their kids?

    Garran has always been high strung. His CF Doc in VA actually wanted us to get him tested for ADHD. But I think it was mostly cause he was on steroids most of his life. He seems better now that he is on a much lower dose.
  4. V

    Hyperactivity with CF Kids..anyone have this with their kids?

    Garran has always been high strung. His CF Doc in VA actually wanted us to get him tested for ADHD. But I think it was mostly cause he was on steroids most of his life. He seems better now that he is on a much lower dose.
  5. V

    Hyperactivity with CF Kids..anyone have this with their kids?

    Garran has always been high strung. His CF Doc in VA actually wanted us to get him tested for ADHD. But I think it was mostly cause he was on steroids most of his life. He seems better now that he is on a much lower dose.
  6. V

    Hyperactivity with CF Kids..anyone have this with their kids?

    Garran has always been high strung. His CF Doc in VA actually wanted us to get him tested for ADHD. But I think it was mostly cause he was on steroids most of his life. He seems better now that he is on a much lower dose.
  7. V

    Hyperactivity with CF Kids..anyone have this with their kids?

    Garran has always been high strung. His CF Doc in VA actually wanted us to get him tested for ADHD. But I think it was mostly cause he was on steroids most of his life. <br /> <br />He seems better now that he is on a much lower dose. <br /> <br />
  8. V

    Eye Color

    Garran has dark brown eyes. I dont have CF but I have hazel eyes and they change from green/grey/blue depending on my mood and what I am wearing.
  9. V

    Eye Color

    Garran has dark brown eyes. I dont have CF but I have hazel eyes and they change from green/grey/blue depending on my mood and what I am wearing.
  10. V

    Eye Color

    Garran has dark brown eyes. I dont have CF but I have hazel eyes and they change from green/grey/blue depending on my mood and what I am wearing.
  11. V

    Eye Color

    Garran has dark brown eyes. I dont have CF but I have hazel eyes and they change from green/grey/blue depending on my mood and what I am wearing.
  12. V

    Eye Color

    Garran has dark brown eyes. <br /> <br />I dont have CF but I have hazel eyes and they change from green/grey/blue depending on my mood and what I am wearing.
  13. V

    needs advice with a transplant....

    So many things changed after tx. First Garran has gained over 10 pounds since his transplant in Feb. And will soon be able to get rid of his G tube as he no longer uses it. He takes a number of medications post Tx but as with CF these meds are different for everyone that has a tx. this is...
  14. V

    needs advice with a transplant....

    So many things changed after tx. First Garran has gained over 10 pounds since his transplant in Feb. And will soon be able to get rid of his G tube as he no longer uses it. He takes a number of medications post Tx but as with CF these meds are different for everyone that has a tx. this is...
  15. V

    needs advice with a transplant....

    So many things changed after tx. First Garran has gained over 10 pounds since his transplant in Feb. And will soon be able to get rid of his G tube as he no longer uses it. He takes a number of medications post Tx but as with CF these meds are different for everyone that has a tx. this is...
  16. V

    needs advice with a transplant....

    So many things changed after tx. First Garran has gained over 10 pounds since his transplant in Feb. And will soon be able to get rid of his G tube as he no longer uses it. He takes a number of medications post Tx but as with CF these meds are different for everyone that has a tx. this is...
  17. V

    needs advice with a transplant....

    So many things changed after tx. First Garran has gained over 10 pounds since his transplant in Feb. And will soon be able to get rid of his G tube as he no longer uses it. <br /> <br />He takes a number of medications post Tx but as with CF these meds are different for everyone that has a tx...
  18. V

    needs advice with a transplant....

    Ok, So being a parent I can only give you my observations etc.. on This topic. But, that being said, when making the decision to list my son (8 yrs old). We weighed alot of things. We had the same thought as you, "If God says its time, then it is time". But looking into my son's beautiful...
  19. V

    needs advice with a transplant....

    Ok, So being a parent I can only give you my observations etc.. on This topic. But, that being said, when making the decision to list my son (8 yrs old). We weighed alot of things. We had the same thought as you, "If God says its time, then it is time". But looking into my son's beautiful...
  20. V

    needs advice with a transplant....

    Ok, So being a parent I can only give you my observations etc.. on This topic. But, that being said, when making the decision to list my son (8 yrs old). We weighed alot of things. We had the same thought as you, "If God says its time, then it is time". But looking into my son's beautiful...
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