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  1. T

    CF, marriage and depression

    Hey there. i am not a cf client, I am on the other side of the fence. My son has CF and my husband has somany health problems its rediculous. I am only 35 and have been married for almost 13 years. We have 3 children and the youngest with CF. I can honestly tell I was depressed for a while, I...
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    Grandmother of a CF infant, would love to talk to parents/grandparents

    I would say let your child eat what they want. If the child is hungry, let them eat. I know it has helped my son alot. French fries are the besst, but once they are ready to eat. A of my boys were on table food early, they were always hungry. Besides, table food has a higher fat content than...
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    Grandmother of a CF infant, would love to talk to parents/grandparents

    I am a mom of a 4 year old, this Friday, that has CF. I used to worry about my son gaining weight. It was even harder when he was an infant because he had horrible reflux and it seemed like he threw up his entire bottle. My sons name is Joey, and he is the baby of 3 kids. He had a rough start...
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    Problems with school

    Sorry to hear you are having trouble. I would start sending very aggressive emails to the teacher, cc in the principle and superintendant stating the emergency of the situation. and also to threaten that you will hire a lawyer for their negligence and creating an environmrnt that is toxic for...
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    MRSA

    Hello MariaHt Hello Maria; I know a good amount about MRSA. My son,one of my non CF children, had a MRSA outbreak about 5 years ago. MRSA is a bacteria that almost everyone carries on their body.MRSA is found in instiutions, hospitals, daycares, etc Once the bacteria becomes active, it is easy...
  6. T

    MRSA

    Hello MariaH Hello Maria; I know a good amount about MRSA. My son,one of my non CF children, had a MRSA outbreak about 5 years ago. MRSA is a bacteria that almost everyone carries on their body.MRSA is found in instiutions, hospitals, daycares, etc Once the bacteria becomes active, it is easy...
  7. T

    I need a change ...

    But it has gotten better. My son is doing better, my husband is home (which would've never happened if this didn't happen to him), and I still am having moments, but in general am improving emotionally better. I will go through waves of doing all of the therapies and treatments, and somedays...
  8. T

    I need a change ...

    But it has gotten better. My son is doing better, my husband is home (which would've never happened if this didn't happen to him), and I still am having moments, but in general am improving emotionally better. I will go through waves of doing all of the therapies and treatments, and somedays...
  9. T

    I need a change ...

    Julie; I know exactly what you mean. I ask myself, why bother, there is no point. But living through the moment you are describing will pass. Everyone kept telling me god only gives you what you can handle. My response is BULLoni. I have had more happen to myself, son and husband than most...
  10. T

    I need a change ...

    Julie; I know exactly what you mean. I ask myself, why bother, there is no point. But living through the moment you are describing will pass. Everyone kept telling me god only gives you what you can handle. My response is BULLoni. I have had more happen to myself, son and husband than most...
  11. T

    I dont do my treatments

    I dontgive my sons breathing treatments. He has CF and is doing well, I dont feel he needs them. I dont know if it is the denial, laziness or depression. I am not a big fan of alot of meds and it seemed like thedoctorkept giving him soo many antibiotics, breathing treatments and steroids.Now, he...
  12. T

    I dont do my treatments

    I dontgive my sons breathing treatments. He has CF and is doing well, I dont feel he needs them. I dont know if it is the denial, laziness or depression. I am not a big fan of alot of meds and it seemed like thedoctorkept giving him soo many antibiotics, breathing treatments and steroids.Now, he...
  13. T

    Anyone with single mutation w/CF symptoms?

    Just a thought. Try a Kidney doctor/specialist. My husband had other issues, nonCF related,and the Nephrologist (Kidney Doctor) was dealing with findings on protiens, and certain vitamin deficiencies. We had to hit a few up before we found any pertinent answers. He is doing better since his...
  14. T

    Anyone with single mutation w/CF symptoms?

    Just a thought. Try a Kidney doctor/specialist. My husband had other issues, nonCF related,and the Nephrologist (Kidney Doctor) was dealing with findings on protiens, and certain vitamin deficiencies. We had to hit a few up before we found any pertinent answers. He is doing better since his...
  15. T

    Anyone with single mutation w/CF symptoms?

    My son has a single mutation as well.He is doing well, and sometimes symptoms disappear. He does need his pancreatic ensymes though. He gets low fevers from time to time, which means he needs to add more salt to his food. He has some extra phlem from time to time, but has never had a problem...
  16. T

    Anyone with single mutation w/CF symptoms?

    My son has a single mutation as well.He is doing well, and sometimes symptoms disappear. He does need his pancreatic ensymes though. He gets low fevers from time to time, which means he needs to add more salt to his food. He has some extra phlem from time to time, but has never had a problem...
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