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Still not fixed!

Still not fixed!

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>mamaScarlett</b></i> My dr gets a 4.9. I docked them a bit bc of phone communication issues, and usually thats around prescriptions. It shouldn't take, imo, 3 phone calls to get a script filled. But that would be the fault of the...

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>mamaScarlett</b></i> My dr gets a 4.9. I docked them a bit bc of phone communication issues, and usually thats around prescriptions. It shouldn't take, imo, 3 phone calls to get a script filled. But that would be the fault of the...

I am curious how many received their CF care from a pulmo that isn't a part of an accredited CF center? Do you feel you are getting the most up to date care? What prompted you to go out of the CF Center circle? I would have never considered a non-accredited center, but lately my center has...

I am curious how many received their CF care from a pulmo that isn't a part of an accredited CF center? Do you feel you are getting the most up to date care? What prompted you to go out of the CF Center circle? I would have never considered a non-accredited center, but lately my center has...

This issue has been ongoing for several weeks. On 5+ threads that I have seen. It really inhibits discussion and idea exchange. I have a life outside my job too, Becki - but I am also on top of the work I am paid to do.

This issue has been ongoing for several weeks. On 5+ threads that I have seen. It really inhibits discussion and idea exchange. I have a life outside my job too, Becki - but I am also on top of the work I am paid to do.

2. I'm pretty unhappy with my clinic - I get the sense they are overwhelmed and they whole team is becoming apathetic. LOTS of mistakes, never saying sorry. We are treated like #s, not like people. I am actually looking for another CF center in my area - I may actually go to a non-accredited...

2. I'm pretty unhappy with my clinic - I get the sense they are overwhelmed and they whole team is becoming apathetic. LOTS of mistakes, never saying sorry. We are treated like #s, not like people. I am actually looking for another CF center in my area - I may actually go to a non-accredited...

thread on PDE5's is cut off, Ennio. why isn't there a permanent fix for this?

thread on PDE5's is cut off, Ennio. why isn't there a permanent fix for this?

http://clinicaltrials.gov/ct2/show/NCT00659529

http://clinicaltrials.gov/ct2/show/NCT00659529

I was gene tested in 1991 and my genes were identified then.

I was gene tested in 1991 and my genes were identified then.

Great news! his has been a long time coming and I'm so grateful it!

Great news! his has been a long time coming and I'm so grateful it!

I agree about the shower - I consider the shower a necessity that can't be avoided. I consider an hobby with another CFer less of a necessity. Very different activities and not apples to apples in my mind. This isn't a bubble - it's about making smart choices. A bubble would be no gymnastics...

I agree about the shower - I consider the shower a necessity that can't be avoided. I consider an hobby with another CFer less of a necessity. Very different activities and not apples to apples in my mind. This isn't a bubble - it's about making smart choices. A bubble would be no gymnastics...