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  1. S

    DF508 and Kalydeco

    <img src="i/expressions/face-icon-small-sad.gif" border="0"> That's too bad. Vertex is NOT requiring proof of mutation.
  2. S

    NAC taste

    Did you get PharmaNAC? It's not the best tasting, but it's not horrendous either - little grape like flavor. I agree about carbonation - I have always hated it too. In fact, when I get my OGTT every year, I have to drink the stupid cola stuff by looking up at the cieling and drinking so in case...
  3. S

    Saveferris 2009

    I have posted one update on my blog and I will continue to post updates on my blog so you can definitely RSS feed it for any and all updates <img src="i/expressions/face-icon-small-smile.gif" border="0">
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    Saveferris 2009

    I have posted one update on my blog and I will continue to post updates on my blog so you can definitely RSS feed it for any and all updates <img src="i/expressions/face-icon-small-smile.gif" border="0">
  5. S

    Saveferris 2009

    Hey I think it's wise for me to do an update like Mandy's after a few weeks. Definitely ask your doctor to try Kaly - there's no harm to your health in trying! Keep us posted
  6. S

    Saveferris 2009

    Hey I think it's wise for me to do an update like Mandy's after a few weeks. Definitely ask your doctor to try Kaly - there's no harm to your health in trying! Keep us posted
  7. S

    Kalydeco - insurance approval?

    Of course they won't object to Rx-es being filled for any reason. The only time a company won't allow this is when each Rx is being tracked by the FDA under a program called a REMS. Kaly doesn't have this type of REMS, so it can be Rx-ed for any reason <img...
  8. S

    Kalydeco - insurance approval?

    Of course they won't object to Rx-es being filled for any reason. The only time a company won't allow this is when each Rx is being tracked by the FDA under a program called a REMS. Kaly doesn't have this type of REMS, so it can be Rx-ed for any reason <img...
  9. S

    Genotyping, John's Hopkin's research

    free is always good! <img src="i/expressions/face-icon-small-smile.gif" border="0">
  10. S

    Genotyping, John's Hopkin's research

    free is always good! <img src="i/expressions/face-icon-small-smile.gif" border="0">
  11. S

    Genotyping, John's Hopkin's research

    Doesn't Ambry genetics already test for all known genes for the past decade or so? I'm confused as to what the difference is between this and Johns Hopkins .....
  12. S

    Genotyping, John's Hopkin's research

    Doesn't Ambry genetics already test for all known genes for the past decade or so? I'm confused as to what the difference is between this and Johns Hopkins .....
  13. S

    Kalydeco - insurance approval?

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>BleedOrange1968</b></i> Thanks so much for all this info! I am going Friday to my doc. She better get me a script!!! I called Caremark and they cover it for me at an $80 copay a month. I'm taking all these postings with me. Pray pray...
  14. S

    Kalydeco - insurance approval?

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>BleedOrange1968</b></i> Thanks so much for all this info! I am going Friday to my doc. She better get me a script!!! I called Caremark and they cover it for me at an $80 copay a month. I'm taking all these postings with me. Pray pray...
  15. S

    Kalydeco - insurance approval?

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Keepercjr</b></i> jmiller - according to the online info for my script company my copay is $35. I'm trying to get my doctors to prescribe it for me. Get this - the *REP* from vertex told the CF nurse at my clinic that you *can not*...
  16. S

    Kalydeco - insurance approval?

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Keepercjr</b></i> jmiller - according to the online info for my script company my copay is $35. I'm trying to get my doctors to prescribe it for me. Get this - the *REP* from vertex told the CF nurse at my clinic that you *can not*...
  17. S

    Kalydeco - insurance approval?

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>jmiller</b></i> Caroline- so interesting how things are not quite matching up... it sounded pretty straightforward from how Amy described it.. and yet when I asked my previous dr about it she said I woud likely have to petition...
  18. S

    Kalydeco - insurance approval?

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>jmiller</b></i> Caroline- so interesting how things are not quite matching up... it sounded pretty straightforward from how Amy described it.. and yet when I asked my previous dr about it she said I woud likely have to petition...
  19. S

    To all the green smoothies drinkers...and anyone with pseudo!!

    You are so smart and awesome, Mandy! Do you have a recipe for us blenders to blend purple potato?
  20. S

    To all the green smoothies drinkers...and anyone with pseudo!!

    You are so smart and awesome, Mandy! Do you have a recipe for us blenders to blend purple potato?
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