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  1. S

    Allergies kicking off infection

    "Treating allergies when you have CF can dramatically improve lung function. Allergies cause inflammation in the lungs - and as you know, as CFers, we already deal with so much inflammation to begin with. So heading allergies off at the pass is essential to good health."...
  2. S

    Allergies kicking off infection

    "Treating allergies when you have CF can dramatically improve lung function. Allergies cause inflammation in the lungs - and as you know, as CFers, we already deal with so much inflammation to begin with. So heading allergies off at the pass is essential to good health."...
  3. S

    Does anyone know if Kalydeco would work or can be tried on other mutation?

    http://lmgtfy.com/?q=3272-26a%3Eg looks like a splicing mutation
  4. S

    Does anyone know if Kalydeco would work or can be tried on other mutation?

    http://lmgtfy.com/?q=3272-26a%3Eg looks like a splicing mutation
  5. S

    Does anyone know if Kalydeco would work or can be tried on other mutation?

    You go girl! Nothing is guarenteed, of course. It's a long shot. But it's certainly worth a try.....
  6. S

    Does anyone know if Kalydeco would work or can be tried on other mutation?

    You go girl! Nothing is guarenteed, of course. It's a long shot. But it's certainly worth a try.....
  7. S

    insensitive to tobramycin?!

    So bizarre - I can't see the reply that I made on this thread a few days ago. You may be able change your sensitivities to abx - you can read about my experience here: <a...
  8. S

    insensitive to tobramycin?!

    So bizarre - I can't see the reply that I made on this thread a few days ago. You may be able change your sensitivities to abx - you can read about my experience here: <a...
  9. S

    Does anyone know if Kalydeco would work or can be tried on other mutation?

    Orange, there's a lot left to be discovered about Kalydeco as a mono therapy. So far, it's only been tested in DDf508 and G551D. That's why many people are trying the drug, even if they don't have G551D. It will be exciting to see what people report after trying the med. And some insurances...
  10. S

    Does anyone know if Kalydeco would work or can be tried on other mutation?

    Orange, there's a lot left to be discovered about Kalydeco as a mono therapy. So far, it's only been tested in DDf508 and G551D. That's why many people are trying the drug, even if they don't have G551D. It will be exciting to see what people report after trying the med. And some insurances...
  11. S

    Question about Mutation Classes

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Anomie</b></i> Yeah but is anybody besides "save ferris" on kalydeco and not have a gating mutation. </end quote> Yes there are several. Not a ton, but there are a few. <img src="i/expressions/face-icon-small-smile.gif" border="0">...
  12. S

    Question about Mutation Classes

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Anomie</b></i> Yeah but is anybody besides "save ferris" on kalydeco and not have a gating mutation. </end quote> Yes there are several. Not a ton, but there are a few. <img src="i/expressions/face-icon-small-smile.gif" border="0">...
  13. S

    Question about Mutation Classes

    <div class="FTQUOTE"><begin quote><em>Originally posted by: <strong>sAmmie0607</strong></em>You only have one copy of DF508 and the other CFTR mutation Di507 may have been approved with a list of other mutations that fall under the same "gating" or classified mutation as G551D/class III, by the...
  14. S

    Question about Mutation Classes

    <div class="FTQUOTE"><begin quote><em>Originally posted by: <strong>sAmmie0607</strong></em>You only have one copy of DF508 and the other CFTR mutation Di507 may have been approved with a list of other mutations that fall under the same "gating" or classified mutation as G551D/class III, by the...
  15. S

    To those on kalydeco---Lauren (your thoughts, please)

    Took my 1st dose tonight. Down the hatch......
  16. S

    To those on kalydeco---Lauren (your thoughts, please)

    Took my 1st dose tonight. Down the hatch......
  17. S

    Question about Mutation Classes

    Medicaid's formularies are different in each state. You never know unless you try!
  18. S

    Question about Mutation Classes

    Medicaid's formularies are different in each state. You never know unless you try!
  19. S

    insensitive to tobramycin?!

    http://noexcusesnoexcuses.blogspot.com/search?updated-max=2012-01-21T19:03:00-05:00&max-results=1
  20. S

    insensitive to tobramycin?!

    http://noexcusesnoexcuses.blogspot.com/search?updated-max=2012-01-21T19:03:00-05:00&max-results=1
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