Search results

Sarah don't let insurance hold you back - people are assuming insurance will be a buggar but I know a handful of people whose insurance let Kaly slide right through. Don't let assumptions hold you back!

Sarah don't let insurance hold you back - people are assuming insurance will be a buggar but I know a handful of people whose insurance let Kaly slide right through. Don't let assumptions hold you back!

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>musclemania70</b></i> I found out my insurance covers Kalydeco, no further verification or letters from Doctor needed, just a script. No additional costs except the regular copay. I also spoke with Vertex on the phone and they said as...

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>musclemania70</b></i> I found out my insurance covers Kalydeco, no further verification or letters from Doctor needed, just a script. No additional costs except the regular copay. I also spoke with Vertex on the phone and they said as...

I don't think it was a good idea - we have tried this many times over the past 7 years I've been on the boards and it never works out. People come to the adults section most frequently and those topics moved to other sections just don't get as much attention. It's just how it is..... So I...

I don't think it was a good idea - we have tried this many times over the past 7 years I've been on the boards and it never works out. People come to the adults section most frequently and those topics moved to other sections just don't get as much attention. It's just how it is..... So I...

Check with Lauren (LouLou) if you would like. Thanks to her, Kalydeco is on the market. If people like her didn't participate, we may not have the drug on the market. We all owe a LOT to people like Lauren!

Check with Lauren (LouLou) if you would like. Thanks to her, Kalydeco is on the market. If people like her didn't participate, we may not have the drug on the market. We all owe a LOT to people like Lauren!

This was from November of the Phase IIa clinical trial of 770+809. As you can see, the sweat chloride from baseline didn't decrease very dramatically after 21 days, on average. Mean decrease was - 9.10 mmol/L It's not a complete fail - but it's definitely not what we saw with 770 and G551D...

This was from November of the Phase IIa clinical trial of 770+809. As you can see, the sweat chloride from baseline didn't decrease very dramatically after 21 days, on average. Mean decrease was - 9.10 mmol/L It's not a complete fail - but it's definitely not what we saw with 770 and G551D...

809+770 didn't produce as great of results as expected, yes. 770 will absolutely be needed - but 661 might work better than 809. or there are thoughts that perhaps all 3 in conjunction, from what i heard. as you see from the study link, they are combining 770 and 661..... not 809 and 661.

809+770 didn't produce as great of results as expected, yes. 770 will absolutely be needed - but 661 might work better than 809. or there are thoughts that perhaps all 3 in conjunction, from what i heard. as you see from the study link, they are combining 770 and 661..... not 809 and 661.

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>musclemania70</b></i> JAmy, that would be great if you kept us updated as well and let us know how its going. We would all like to hear about your experiment.</end quote> I will most likely post most details on my blog. But I'll for...

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>musclemania70</b></i> JAmy, that would be great if you kept us updated as well and let us know how its going. We would all like to hear about your experiment.</end quote> I will most likely post most details on my blog. But I'll for...

only recruiting Double DF508. Interesting..... hopefully those who live in the northeast will participate so we can get these results ASAP <img src="i/expressions/face-icon-small-smile.gif" border="0">

only recruiting Double DF508. Interesting..... hopefully those who live in the northeast will participate so we can get these results ASAP <img src="i/expressions/face-icon-small-smile.gif" border="0">

Ya I'm trying Kalydeco this weekend anyway, though. Probably won't do anything, but it's possible it will have a little impact. I'll keep you all posted

Ya I'm trying Kalydeco this weekend anyway, though. Probably won't do anything, but it's possible it will have a little impact. I'll keep you all posted

I would ask Steve from Ambry Genetics on this website or maybe email Sick Kids in Canada who are in the process of creating a big CF mutation database

I would ask Steve from Ambry Genetics on this website or maybe email Sick Kids in Canada who are in the process of creating a big CF mutation database