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<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>candi81</b></i> I've been reading a lot lately about the different CF mutation classes and what they mean. My question is, where can I find out exactly what class my son's 2nd, more rare mutation is in? Our clinic doesn't have a...

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>candi81</b></i> I've been reading a lot lately about the different CF mutation classes and what they mean. My question is, where can I find out exactly what class my son's 2nd, more rare mutation is in? Our clinic doesn't have a...

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Anomie</b></i> Bill: You are incorrect. Having delta f508 will NOT allow you to get kalydeco. </end quote> You are incorrect, Anomie. I have DF508 and Di507 and I have Kalydeco. Who told you we're not ALLOWED to get it?

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Anomie</b></i> Bill: You are incorrect. Having delta f508 will NOT allow you to get kalydeco. </end quote> You are incorrect, Anomie. I have DF508 and Di507 and I have Kalydeco. Who told you we're not ALLOWED to get it?

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>chroma7</b></i> most drugs get approved in phase 4. 770 got approved in phase 3. p.</end quote> No, all drugs are required to go through 3 phases of clinical trials. From the FDA's website. As you can see, Phase IV is post-marketing...

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>chroma7</b></i> most drugs get approved in phase 4. 770 got approved in phase 3. p.</end quote> No, all drugs are required to go through 3 phases of clinical trials. From the FDA's website. As you can see, Phase IV is post-marketing...

Have you tried calling the company?

Have you tried calling the company?

I know a handful of people now who have Kalydeco covered by insurance at a reasonable co-pay and no insurance hassle. And they don't have G551D. So have hope! You never know with insurance until you try....

I know a handful of people now who have Kalydeco covered by insurance at a reasonable co-pay and no insurance hassle. And they don't have G551D. So have hope! You never know with insurance until you try....

several of us have had low co-pays and no hassles with insurance, so its definitely worth getting an Rx and giving it a try. i hate that everyone is just assuming Kalydeco is out of reach because insurance won't cover or co-pays will be too high. you never know unless you try!

several of us have had low co-pays and no hassles with insurance, so its definitely worth getting an Rx and giving it a try. i hate that everyone is just assuming Kalydeco is out of reach because insurance won't cover or co-pays will be too high. you never know unless you try!

if anyone enrolls in 661, please let us know! we would love to cheer you on <img src="i/expressions/face-icon-small-smile.gif" border="0">

if anyone enrolls in 661, please let us know! we would love to cheer you on <img src="i/expressions/face-icon-small-smile.gif" border="0">

Cool. I'm interested to hear what your experience with Kalydeco is. Sorry Ambry lost your sample....that's annoying. Sounds like you can definitely get a hold of the drug whenever you want. If you want good documentation for what to send to insurance (although it sounds like you don't need...

Cool. I'm interested to hear what your experience with Kalydeco is. Sorry Ambry lost your sample....that's annoying. Sounds like you can definitely get a hold of the drug whenever you want. If you want good documentation for what to send to insurance (although it sounds like you don't need...

Ya I was fully prepared to ask other CF docs (I know a few that would have given it to me) if mine didn't. I think your outlook is perfect. There was no way I wasn't going to try the drug.... just to try. WHat mutations do you have, Icomudrox?

Ya I was fully prepared to ask other CF docs (I know a few that would have given it to me) if mine didn't. I think your outlook is perfect. There was no way I wasn't going to try the drug.... just to try. WHat mutations do you have, Icomudrox?

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Incomudrox</b></i> ..... there has also never been a time for CF drugs like now and no one can deny that.</end quote> Even more of a reason to have the thread front and center and not hidden in another section. It's clearly a hot...

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Incomudrox</b></i> ..... there has also never been a time for CF drugs like now and no one can deny that.</end quote> Even more of a reason to have the thread front and center and not hidden in another section. It's clearly a hot...