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We were giving our daughter meal replacement shakes a couple times a day as a snack. That worked so well that the nutritionist bumped her down to one a day. We also put salted butter, cheese and/or ranch dressing on everything. She loves fruit, so I sprinkle it with cinnamon and sugar. It's...

We were giving our daughter meal replacement shakes a couple times a day as a snack. That worked so well that the nutritionist bumped her down to one a day. We also put salted butter, cheese and/or ranch dressing on everything. She loves fruit, so I sprinkle it with cinnamon and sugar. It's...

We were giving our daughter meal replacement shakes a couple times a day as a snack. That worked so well that the nutritionist bumped her down to one a day. We also put salted butter, cheese and/or ranch dressing on everything. She loves fruit, so I sprinkle it with cinnamon and sugar. It's...

We were giving our daughter meal replacement shakes a couple times a day as a snack. That worked so well that the nutritionist bumped her down to one a day. We also put salted butter, cheese and/or ranch dressing on everything. She loves fruit, so I sprinkle it with cinnamon and sugar. It's...

We were giving our daughter meal replacement shakes a couple times a day as a snack. That worked so well that the nutritionist bumped her down to one a day. <br /> We also put salted butter, cheese and/or ranch dressing on everything. She loves fruit, so I sprinkle it with cinnamon and sugar...

I know how you feel. We are in the process of weeding out the bad eggs. My daughter was diagnosed 3 months ago and I still cry a lot. It makes people uncomfortable, but I feel like if they really cared about us they could spend a little time educating themselves and I wouldn't have to teach CF...

I know how you feel. We are in the process of weeding out the bad eggs. My daughter was diagnosed 3 months ago and I still cry a lot. It makes people uncomfortable, but I feel like if they really cared about us they could spend a little time educating themselves and I wouldn't have to teach CF...

I know how you feel. We are in the process of weeding out the bad eggs. My daughter was diagnosed 3 months ago and I still cry a lot. It makes people uncomfortable, but I feel like if they really cared about us they could spend a little time educating themselves and I wouldn't have to teach CF...

I know how you feel. We are in the process of weeding out the bad eggs. My daughter was diagnosed 3 months ago and I still cry a lot. It makes people uncomfortable, but I feel like if they really cared about us they could spend a little time educating themselves and I wouldn't have to teach CF...

I know how you feel. We are in the process of weeding out the bad eggs. My daughter was diagnosed 3 months ago and I still cry a lot. It makes people uncomfortable, but I feel like if they really cared about us they could spend a little time educating themselves and I wouldn't have to teach CF...

Most kids and adults for that matter do not properly wash their hands with soap and water. My daughter's CF center says that if you can see the dirt use soap if not use sanitizer. I'd have a talk with that teacher if I were you. My son will start kindergarten this year and he will be bringing...

Most kids and adults for that matter do not properly wash their hands with soap and water. My daughter's CF center says that if you can see the dirt use soap if not use sanitizer. I'd have a talk with that teacher if I were you. My son will start kindergarten this year and he will be bringing...

Most kids and adults for that matter do not properly wash their hands with soap and water. My daughter's CF center says that if you can see the dirt use soap if not use sanitizer. I'd have a talk with that teacher if I were you. My son will start kindergarten this year and he will be bringing...

Most kids and adults for that matter do not properly wash their hands with soap and water. My daughter's CF center says that if you can see the dirt use soap if not use sanitizer. I'd have a talk with that teacher if I were you. My son will start kindergarten this year and he will be bringing...

Most kids and adults for that matter do not properly wash their hands with soap and water. My daughter's CF center says that if you can see the dirt use soap if not use sanitizer. I'd have a talk with that teacher if I were you. My son will start kindergarten this year and he will be bringing...

Thankyou for your honesty and wealth of knowledge. Kari

Steve, Thankyou for your response to my previous question. I have another one I'm hoping you can answer. So, in the "pipeline" there are medications that are designed to treat specific mutations, Vertex Pharm. has VX-770 for G551D and VX-809 for DF508, and PTC Therapeutics has PTC 124 for...

Hello Steve, My daughters doctor told us that her mutations were R1066C and 394delTNT. I've searched for them in the mutation database and did not find the mutation 394delTNT. However, there was a 394delTT. I thought that maybe I misunderstood her when she was telling them to me but my husband...