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  1. C

    Please help me (husband needs transplant)

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>summer732</b></i> Hi, If you want to send me a PM and I will give you my e-mail address. That way, your husband can feel free to ask any questions that come to mind and I can answer them for him (according to my experiences). I'm 7...
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    Please help me (husband needs transplant)

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>summer732</b></i> Hi, If you want to send me a PM and I will give you my e-mail address. That way, your husband can feel free to ask any questions that come to mind and I can answer them for him (according to my experiences). I'm 7...
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    Please help me (husband needs transplant)

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>CrisDopher</b></i> <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Cbegley</b></i> now he is at 19 (because he is a little sick) He was prescribed cipro and we are due back in a week to tell the Dr. how he is feeling and...
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    Please help me (husband needs transplant)

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>CrisDopher</b></i> <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Cbegley</b></i> now he is at 19 (because he is a little sick) He was prescribed cipro and we are due back in a week to tell the Dr. how he is feeling and...
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    how many treatments do you do a day?

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Brad</b></i> 4 for me.... I also add mucomyst morning and evening,,</end quote> Where do you order mucomyst from? ive never heard of it...I would like to see if I could give it a try by asking my Doctor about it, but was wondering...
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    how many treatments do you do a day?

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Brad</b></i> 4 for me.... I also add mucomyst morning and evening,,</end quote> Where do you order mucomyst from? ive never heard of it...I would like to see if I could give it a try by asking my Doctor about it, but was wondering...
  7. C

    how many treatments do you do a day?

    Husband changes his depending on what he is supposed to be taking normally he does this: Albuterol 4x a day Pulmozyme 1x a day Hyper tonic saline 1x a day Colistamethate 1x a day Cayston 3x a day (every other month) Does vest 2x a day usually for about 45 minutes a piece. Does Albuterol...
  8. C

    how many treatments do you do a day?

    Husband changes his depending on what he is supposed to be taking normally he does this: Albuterol 4x a day Pulmozyme 1x a day Hyper tonic saline 1x a day Colistamethate 1x a day Cayston 3x a day (every other month) Does vest 2x a day usually for about 45 minutes a piece. Does Albuterol...
  9. C

    Reactions to Vancomycin?

    My husband has an allergic reaction to Vanco too. But if they do decide to put him on it they cut the administration time down to half and also have him taking benedryl at the same time to put off the red/itchy effects. Most of the time though they just decide to use Zosyn instead to skip all...
  10. C

    Reactions to Vancomycin?

    My husband has an allergic reaction to Vanco too. But if they do decide to put him on it they cut the administration time down to half and also have him taking benedryl at the same time to put off the red/itchy effects. Most of the time though they just decide to use Zosyn instead to skip all...
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    Please help me (husband needs transplant)

    I'm going through a really hard time right now & my husband is too. He is the one with CF. We went to the Doctor today and he wasn't feeling well in the first place, but his lung function is 19%. We are both really scared, I sometimes think I am more so than him, but I don't think he wants to...
  12. C

    Please help me (husband needs transplant)

    I'm going through a really hard time right now & my husband is too. He is the one with CF. We went to the Doctor today and he wasn't feeling well in the first place, but his lung function is 19%. We are both really scared, I sometimes think I am more so than him, but I don't think he wants to...
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    Ideas for venus

    Yeah, that doesn't sound like such a hot idea. People with CF are suggested to stay away from others who have it, because they can catch each others germs that one person who CF might be immune to and carry the germ, and give it to someone else.
  14. C

    Ideas for venus

    Yeah, that doesn't sound like such a hot idea. People with CF are suggested to stay away from others who have it, because they can catch each others germs that one person who CF might be immune to and carry the germ, and give it to someone else.
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    Which Clearance vest can you recommend?

    If you don't have an acapella you could always buy some balloons for your daughter and have her blow them up about 15 times, it is good exercise for the lungs, and might make her cough a bit so she can get some of the mucus up that way.
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    Which Clearance vest can you recommend?

    If you don't have an acapella you could always buy some balloons for your daughter and have her blow them up about 15 times, it is good exercise for the lungs, and might make her cough a bit so she can get some of the mucus up that way.
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    Daughters going to Hospital Again.

    My husband went through several bouts of going to the hospital about every 3 months. I did some research online and have been doing different things with his treatments, and he has only been going about 2x a year now. I think it is a bit harder when they are younger because they haven't had a...
  18. C

    Daughters going to Hospital Again.

    My husband went through several bouts of going to the hospital about every 3 months. I did some research online and have been doing different things with his treatments, and he has only been going about 2x a year now. I think it is a bit harder when they are younger because they haven't had a...
  19. C

    do you ever get better on your own?

    I haven't read any one else's responses yet, but please don't do that. My husband has done this before-putting it off thinking he can get better and it just gets worse which = more damage and suffering. We are all human and it is natural to get sick and it is OKAY so accept that you get sick...
  20. C

    do you ever get better on your own?

    I haven't read any one else's responses yet, but please don't do that. My husband has done this before-putting it off thinking he can get better and it just gets worse which = more damage and suffering. We are all human and it is natural to get sick and it is OKAY so accept that you get sick...
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