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I know how you feel. I had one thing after anither right up till transplant. I can't say it was easy or not stressful. It is enough to drive a person insane. But what I can tell you every bit of it is worth going through. When you wake up from transplant and you can take in a deep breath and not...

In the 13 months since transplant I have had two beers total. I drank way to much when I was 18-25ish. Am out of that phase, but now and then one sounds good and shouldn't hurt

A year ago I was told from social worker at the university of washington medical center for some one with no form of insurance needs to have 500, 000 $ upfront before surgery. That number is less for non cf patients only needing 1 lung. And if it helps the total bill for my surgery was 670, 000...

I am 13 months out from my transplant and have yet to get a bill for the sugery. I have got statements of how much it was. The only medication I pay for out of pocket is magnesium oxide only cause its over the counter. No co pay or anything. I do get small bills for blood work. I am on montana...

When I was doing fund raising for my transplant, I found the best way to get the word out was social networking. Facebook was where 80% of my funding came from. Spam it up and ask friends and family to do as well. Hope this helps.

Its been a long time since I have posted here. I received my double lung transplant 7-29-2013, at age 30. If any of you have any questions about any aspect of my expierence going through the transplant feel free to ask. I will share any thing and everything. I will start logging in here more...

When I had my feeding tube in, I was on Jevity 2.0 and never had ussues with it. Like others have said if your formuka has a lot of fiber that coukd be doing it. Something else to think about.. if you run tube feed over night, how often and how many enzymes do you take?

If I recall correctly it took about a month and a half before it was back to normal. Mine hurt like hell for the first 2 weeks.. trying to sit up was a chore, as was dressing myself for that matter. I didn't realize that pretty much any movement your body makes goes through that muscle they put...

Sorry to hear you got bad side effects, I have never had any with it. I was on a course of it for 3 months a year ago.. No problems. Good luck, and hope you find something to lessen the side effects.<br>Michael<br>

Sorry to hear you got bad side effects, I have never had any with it. I was on a course of it for 3 months a year ago.. No problems. Good luck, and hope you find something to lessen the side effects.<br>Michael<br>

Sorry to hear you got bad side effects, I have never had any with it. I was on a course of it for 3 months a year ago.. No problems. Good luck, and hope you find something to lessen the side effects.<br>Michael<br>

For those that don't know, I am in the process of getting on the double lung transplant list. I thought I would share with all of you my website I made for my fundraising. I am doing daily video blogs, and invite you all to follow along with me on this journey.<br>If you wish to help that is...

For those that don't know, I am in the process of getting on the double lung transplant list. I thought I would share with all of you my website I made for my fundraising. I am doing daily video blogs, and invite you all to follow along with me on this journey.<br>If you wish to help that is...

For those that don't know, I am in the process of getting on the double lung transplant list. I thought I would share with all of you my website I made for my fundraising. I am doing daily video blogs, and invite you all to follow along with me on this journey.<br>If you wish to help that is...

if you can afford one a pulseoximeteronline it tells you your o2 levels, my dr wants me to keep my o2 above 94, which means about 4 liters at night and 7 when i doing activity. sucks cause most insurance don't cover them, but u can get a decent one for around 40$ hope i helped some

if you can afford one a pulseoximeteronline it tells you your o2 levels, my dr wants me to keep my o2 above 94, which means about 4 liters at night and 7 when i doing activity. sucks cause most insurance don't cover them, but u can get a decent one for around 40$ hope i helped some

if you can afford one a pulseoximeteronline it tells you your o2 levels, my dr wants me to keep my o2 above 94, which means about 4 liters at night and 7 when i doing activity. sucks cause most insurance don't cover them, but u can get a decent one for around 40$ <br />hope i helped some

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Havoc</b></i> <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>hillthekhore</b></i> Offense is just an excuse not to have discussion.</end quote></div> Agreed, and it would seem from his last post that the judgmental tone...

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Havoc</b></i> <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>hillthekhore</b></i> Offense is just an excuse not to have discussion.</end quote> Agreed, and it would seem from his last post that the judgmental tone of...

<p><div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Havoc</b></i> <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>hillthekhore</b></i> Offense is just an excuse not to have discussion.</end quote> Agreed, and it would seem from his last post that the judgmental tone of...