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I would also be interested in the new forum <img src="i/expressions/face-icon-small-smile.gif" border="0">

Thank you... I never knew you had to train yourself to sweat. I will be trying that before her next test. Iam going to call the Toronto Hospital just have been so busy. I have hopes that when I express my concern again to my daughters CF doctor that he will listen and try something new!

I just finished reading Divergent!! Amazing! As well as The Hunger Games series. I am right now reading City of Bones which is book 1 of a trilogy.

Im going to try! It can't hurt and if we get a result than even better!!!

I will ask about an appeal. It does seem like we are really gettin no where with the sweat test and I am getting frustrated. I will try feeding her salt before her sweat August 1st. Not too sure if it will be easy to get a 5 year old who I never add salt to her food to eat it tho :s. Worth a try...

The doctor says that here it is an issue of having to get a positive sweat test done in order to qualify so to speak for a genetic test. I think you would want to know sooner than later especially with her younger sister having cf and being diagnosed at 5 weeks old. I just find it so stressful...

It just really scares me because CF has never been ruled out. In alberta her younger sister was tested at birth but when she was born it was in BC and a year before they started testing at birth. I just dont want it to slip through the cracks!!

I am going to give her some of her sisters enzymes since they are all free anyways it shouldn't hurt to give her a few. I also take them since I have had my gall bladder removed if I am eating anything extra fatty. I am going to try to call the hospital in Toronto see what they say. She has...

we are in Canada and he says it is different here. I'e been trying to figure out since Nov 2010 <img src="i/expressions/face-icon-small-sad.gif" border="0">

My 5 year old daughter has never been diagnosed but has never had it officially ruled out. She has had over 10 sweat test but they are all incinclusive because they can not collect enough sweat. I have asked our cf doctor if there is any other tests we can do or genetic testing. He say that he...

Thank you <img src="i/expressions/face-icon-small-smile.gif" border="0">

Thank you <img src="i/expressions/face-icon-small-smile.gif" border="0">

Any one know anything about this? CF clinic said they are just going to monitor it for now.

Any one know anything about this? CF clinic said they are just going to monitor it for now.

I am from Edmonton, This drug doesn't target my daughters mutation but I would be more than willing to sign the petition!

I am from Edmonton, This drug doesn't target my daughters mutation but I would be more than willing to sign the petition!

I am in Edmonton, Kalydeco doesnt help my daughter but I would be more than willing to sign a petition to get it here faster!

I am in Edmonton, Kalydeco doesnt help my daughter but I would be more than willing to sign a petition to get it here faster!

I have a 18 month old daughter with cf. You can message me or add me to fb if you would like.

I have a 18 month old daughter with cf. You can message me or add me to fb if you would like.