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  1. S

    3905inst

    Thank you... I am going to send this info to the cf doc we deal with and ask him what it means lol. I dont undertsnad all the medical terms... lol
  2. S

    3905inst

    Thank you... I am going to send this info to the cf doc we deal with and ask him what it means lol. I dont undertsnad all the medical terms... lol
  3. S

    How many of you underwent an abortion

    I would be less worried about being pergnant and more worried about having an std if you arent using any form of protection :s I would contact your doctor also
  4. S

    3905inst

    I am guessing no one has any info on this gene... ??
  5. S

    3905inst

    I am guessing no one has any info on this gene... ??
  6. S

    Mothers of CF children

    strange that you also had a hard time to gain weight helenlight.
  7. S

    Mothers of CF children

    strange that you also had a hard time to gain weight helenlight.
  8. S

    2942insT

    yours is close to mine. miy daughter has 3905insT and deltaf508. Are our genes similar? I have been looking for info on it for some while now.
  9. S

    2942insT

    yours is close to mine. miy daughter has 3905insT and deltaf508. Are our genes similar? I have been looking for info on it for some while now.
  10. S

    Symptoms in 2 month old?

    In alberta they do genetic testing for cf as a baby. My daughter however lost alot more weight than they like them too before we left the hospital (born 9lbs 9oz) left the hospital (7lbs 3oz). She had very loose stools and usually bright green. She was breastfed but as I would be feeding her she...
  11. S

    Symptoms in 2 month old?

    In alberta they do genetic testing for cf as a baby. My daughter however lost alot more weight than they like them too before we left the hospital (born 9lbs 9oz) left the hospital (7lbs 3oz). She had very loose stools and usually bright green. She was breastfed but as I would be feeding her she...
  12. S

    Anyone in Edmonton, AB, Canada?

    I am holding a fundraiser and would love to connect with some cfers or parents of cfers in my area. It would be great to have people come out for the fundraiser. if anyone wants any info on it feel free to msg me.
  13. S

    Anyone in Edmonton, AB, Canada?

    I am holding a fundraiser and would love to connect with some cfers or parents of cfers in my area. It would be great to have people come out for the fundraiser. if anyone wants any info on it feel free to msg me.
  14. S

    I know this is my second child with cystic fibrosis but...

    When my daughter was diagnosed at 5 weeks her poops were bright green and i would be feeding her as she would be pooping. I called the public health nurse and she said that was a normal breast fed baby poop. I knew there was something wrong and shortly after got the call from the cf clinic. I...
  15. S

    I know this is my second child with cystic fibrosis but...

    When my daughter was diagnosed at 5 weeks her poops were bright green and i would be feeding her as she would be pooping. I called the public health nurse and she said that was a normal breast fed baby poop. I knew there was something wrong and shortly after got the call from the cf clinic. I...
  16. S

    Anyone with single mutation w/CF symptoms?

    I should mention I also have had my gall bladder removed and pancreatitus as well as constant bronchittis. Strange to know that as a carrier I have symptoms too.
  17. S

    Anyone with single mutation w/CF symptoms?

    I should mention I also have had my gall bladder removed and pancreatitus as well as constant bronchittis. Strange to know that as a carrier I have symptoms too.
  18. S

    Anyone with single mutation w/CF symptoms?

    My sister carries a single gene mnutation 3905inst and she has been to see an adult cf doctor. he has said she has a gene disfunction and that it causes symptoms. She had a high sweat test result and has always had constant bronchittis, pneumonias, and sinus problems. She has always been sick as...
  19. S

    Anyone with single mutation w/CF symptoms?

    My sister carries a single gene mnutation 3905inst and she has been to see an adult cf doctor. he has said she has a gene disfunction and that it causes symptoms. She had a high sweat test result and has always had constant bronchittis, pneumonias, and sinus problems. She has always been sick as...
  20. S

    Mothers of CF children

    I also did not crave salt but I did have an extremly hard time gaining any weight, in fact I was losing weight. I had gestational diabetes and was on a strict diet/insulin and they were actually upping the amount of food I was eating to so much that I couldn't finmish and thought I was going to...
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