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very helpful! thanks <img src="i/expressions/face-icon-small-smile.gif" border="0">

very helpful! thanks <img src="i/expressions/face-icon-small-smile.gif" border="0">

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>jmiller</b></i> I, like Amy, am interested in trying Kalydeco even though I am DF508/2184delA. I called my doctor last week to see about that process. She said that it would likely require some kind of petition to Vertex. Because it...

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>jmiller</b></i> I, like Amy, am interested in trying Kalydeco even though I am DF508/2184delA. I called my doctor last week to see about that process. She said that it would likely require some kind of petition to Vertex. Because it...

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>musclemania70</b></i> So why wouldn't ANY cf patient go forward and ask their doc for an RX of the Kalydeco just to try it? If one person's doctor will give the script, then there should be other doctors that do the same. Who wouldn't...

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>musclemania70</b></i> So why wouldn't ANY cf patient go forward and ask their doc for an RX of the Kalydeco just to try it? If one person's doctor will give the script, then there should be other doctors that do the same. Who wouldn't...

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>cfsucks</b></i> <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>saveferris2009</b></i> I have insurance that doesn't require approval for any drug. Any drug that a doc prescribes, I can get. Yes, I am extremely blessed -...

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>cfsucks</b></i> <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>saveferris2009</b></i> I have insurance that doesn't require approval for any drug. Any drug that a doc prescribes, I can get. Yes, I am extremely blessed -...

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Kristen</b></i> but he was concerned about it not being approved for my mutation (yet) </end quote> Concerned for safety? Or efficacy? If it's efficacy, how is that a concern? if you use it, and it doesn't work, nothing lost.... <div...

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Kristen</b></i> but he was concerned about it not being approved for my mutation (yet) </end quote> Concerned for safety? Or efficacy? If it's efficacy, how is that a concern? if you use it, and it doesn't work, nothing lost.... <div...

I have insurance that doesn't require approval for any drug. Any drug that a doc prescribes, I can get. Yes, I am extremely blessed - this is one of the reasons I chose the job that I have. I thank God for this blessing, absolutely. So I'm going to try Kalydeco for myself, even though I don't...

I have insurance that doesn't require approval for any drug. Any drug that a doc prescribes, I can get. Yes, I am extremely blessed - this is one of the reasons I chose the job that I have. I thank God for this blessing, absolutely. So I'm going to try Kalydeco for myself, even though I don't...

I will get a hold of this drug and let you know how I feel. I am hetero, with 2 class II's.

I will get a hold of this drug and let you know how I feel. I am hetero, with 2 class II's.

Infuriated!..Respiratory nurse takes my neb cups and washes them in sink and goes to put them in the bag hanging for next treatment???? <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>hmw</b></i> sorry... would have made the link live, but site doesn't like firefox I guess.</end...

Infuriated!..Respiratory nurse takes my neb cups and washes them in sink and goes to put them in the bag hanging for next treatment???? <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>hmw</b></i> sorry... would have made the link live, but site doesn't like firefox I guess.</end...

Infuriated!..Respiratory nurse takes my neb cups and washes them in sink and goes to put them in the bag hanging for next treatment???? So sorry to hear this. My hospital and RT department get LIVID at me. But I throw my non- PARI LC Plus nebs away after each and every treatment. And when the...

Infuriated!..Respiratory nurse takes my neb cups and washes them in sink and goes to put them in the bag hanging for next treatment???? So sorry to hear this. My hospital and RT department get LIVID at me. But I throw my non- PARI LC Plus nebs away after each and every treatment. And when the...

FYI pharmacies always make more money from the insurance companies for filling generics vs. brand. Insurance companies give pharmacies a "fill rate" - a fee basically for filling each and every Rx. The fill rate is higher with generics vs. brand to encourage cheaper meds being dispensed.

Mallory - great info, thanks. Hope you feel better soon. Cutting out sugar (anything "white" in your diet) may help your PA. Do you mind if I ask where you live? And which doc has been helping you with your BC? It's so impossible to find a doc, even a gyn, that gets all of these women hormonal...