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    Questions about my son who has A Typical CF

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>cgerhardt</b></i> My son and daughter have atypical cf. My son is 2 and has been sick pretty much his whole life. He has been hospitalized 5 times and 2 picc lines. He has had a fever everyday since Aug 2010. He has tested positve...
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    Questions about my son who has A Typical CF

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>cgerhardt</b></i> My son and daughter have atypical cf. My son is 2 and has been sick pretty much his whole life. He has been hospitalized 5 times and 2 picc lines. He has had a fever everyday since Aug 2010. He has tested positve...
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    Questions about my son who has A Typical CF

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>cgerhardt</b></i> My son and daughter have atypical cf. My son is 2 and has been sick pretty much his whole life. He has been hospitalized 5 times and 2 picc lines. He has had a fever everyday since Aug 2010. He has tested positve...
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    Video Day in a life of my son & I shown at NACFC conference - see link

    Great video! Last I was here you weren't stating that your son had CF, just 2 CF mutations. So congrats on getting the diagnosis (not that I'm happy he has CF, but that you're getting proper treatment for him). I know it's probably been a very long and tough road to accept all of this, but I...
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    Video Day in a life of my son & I shown at NACFC conference - see link

    Great video! Last I was here you weren't stating that your son had CF, just 2 CF mutations. So congrats on getting the diagnosis (not that I'm happy he has CF, but that you're getting proper treatment for him). I know it's probably been a very long and tough road to accept all of this, but I...
  6. S

    Video Day in a life of my son & I shown at NACFC conference - see link

    Great video! <br /> <br />Last I was here you weren't stating that your son had CF, just 2 CF mutations. So congrats on getting the diagnosis (not that I'm happy he has CF, but that you're getting proper treatment for him). <br /> <br />I know it's probably been a very long and tough road to...
  7. S

    Nexium

    Yup Prevacid gives me hives. But no other PPI does. Keep shopping around for another PPI - you'll find something that helps. Take care.
  8. S

    Nexium

    Yup Prevacid gives me hives. But no other PPI does. Keep shopping around for another PPI - you'll find something that helps. Take care.
  9. S

    Nexium

    Yup Prevacid gives me hives. But no other PPI does. <br /> <br />Keep shopping around for another PPI - you'll find something that helps. Take care.
  10. S

    Anyone in the NYC area interested in (and qualify for) the Vertex 770 Extended Access Program?

    Anyone in the NYC area interested in (and qualify for) the Vertex 770 Extended Access Program? .
  11. S

    Anyone in the NYC area interested in (and qualify for) the Vertex 770 Extended Access Program?

    Anyone in the NYC area interested in (and qualify for) the Vertex 770 Extended Access Program? .
  12. S

    Anyone in the NYC area interested in (and qualify for) the Vertex 770 Extended Access Program?

    Anyone in the NYC area interested in (and qualify for) the Vertex 770 Extended Access Program? .
  13. S

    Anyone in the NYC area interested in (and qualify for) the Vertex 770 Extended Access Program?

    Anyone in the NYC area interested in (and qualify for) the Vertex 770 Extended Access Program? @Incomudrox I'm so shocked that anyone in 2011 with CF wouldn't have a record of their mutations. Given all of the clinical trials going on based on genotype (VX-770 for G551D, VX-770 + VX-890 for...
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    Anyone in the NYC area interested in (and qualify for) the Vertex 770 Extended Access Program?

    Anyone in the NYC area interested in (and qualify for) the Vertex 770 Extended Access Program? @Incomudrox I'm so shocked that anyone in 2011 with CF wouldn't have a record of their mutations. Given all of the clinical trials going on based on genotype (VX-770 for G551D, VX-770 + VX-890 for...
  15. S

    Anyone in the NYC area interested in (and qualify for) the Vertex 770 Extended Access Program?

    Anyone in the NYC area interested in (and qualify for) the Vertex 770 Extended Access Program? @Incomudrox I'm so shocked that anyone in 2011 with CF wouldn't have a record of their mutations. <br /> <br />Given all of the clinical trials going on based on genotype (VX-770 for G551D, VX-770 +...
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    URGENT saline rinse question

    i use a deep fryer that i bought that walmart to sterilize water on my trips. As I'm sure you know, just because it is bottled water does NOT mean it's sterile.....it can still contain bacteria and who wants to rinse your sinuses with bacteria?<br> <br>mine's about a 8 year older version of...
  17. S

    URGENT saline rinse question

    i use a deep fryer that i bought that walmart to sterilize water on my trips. As I'm sure you know, just because it is bottled water does NOT mean it's sterile.....it can still contain bacteria and who wants to rinse your sinuses with bacteria?<br> <br>mine's about a 8 year older version of...
  18. S

    URGENT saline rinse question

    i use a deep fryer that i bought that walmart to sterilize water on my trips. As I'm sure you know, just because it is bottled water does NOT mean it's sterile.....it can still contain bacteria and who wants to rinse your sinuses with bacteria?<br> <br>mine's about a 8 year older version of...
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    Urgent question about Cayston/Altera neb

    and, once again, the URL isn't automatically hyperlinked. Ennio, can you please fix this? a URL should be automatically hyperlinked....
  20. S

    Urgent question about Cayston/Altera neb

    and, once again, the URL isn't automatically hyperlinked. Ennio, can you please fix this? a URL should be automatically hyperlinked....
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