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  1. N

    What is atypical cf?

    Harriett is dead on with the statement that CF is a "spectrum disease" -- there are HUGE variations in severity and age of onset for symptoms. That said, "atypical" is usually used to distinguish from "classic" CF. The biggest factors in a doctor's decision to label someone "atypical" seem to...
  2. N

    What is atypical cf?

    Harriett is dead on with the statement that CF is a "spectrum disease" -- there are HUGE variations in severity and age of onset for symptoms. That said, "atypical" is usually used to distinguish from "classic" CF. The biggest factors in a doctor's decision to label someone "atypical" seem to...
  3. N

    What is atypical cf?

    Harriett is dead on with the statement that CF is a "spectrum disease" -- there are HUGE variations in severity and age of onset for symptoms. That said, "atypical" is usually used to distinguish from "classic" CF. The biggest factors in a doctor's decision to label someone "atypical" seem to...
  4. N

    What is atypical cf?

    Harriett is dead on with the statement that CF is a "spectrum disease" -- there are HUGE variations in severity and age of onset for symptoms. That said, "atypical" is usually used to distinguish from "classic" CF. The biggest factors in a doctor's decision to label someone "atypical" seem to...
  5. N

    What is atypical cf?

    Harriett is dead on with the statement that CF is a "spectrum disease" -- there are HUGE variations in severity and age of onset for symptoms. That said, "atypical" is usually used to distinguish from "classic" CF. The biggest factors in a doctor's decision to label someone "atypical" seem to...
  6. N

    Zenpep

    The lack of FDA approval for other brands has to do with a labeling issue, not a safety or efficacy issue. Basically the enzymes are a little "overstuffed", so the FDA is requiring them to relabel (ex: Creon 20 went to 24, as Harriett noted above). Other enzyme brands will likely be going...
  7. N

    Zenpep

    The lack of FDA approval for other brands has to do with a labeling issue, not a safety or efficacy issue. Basically the enzymes are a little "overstuffed", so the FDA is requiring them to relabel (ex: Creon 20 went to 24, as Harriett noted above). Other enzyme brands will likely be going...
  8. N

    Zenpep

    The lack of FDA approval for other brands has to do with a labeling issue, not a safety or efficacy issue. Basically the enzymes are a little "overstuffed", so the FDA is requiring them to relabel (ex: Creon 20 went to 24, as Harriett noted above). Other enzyme brands will likely be going...
  9. N

    Zenpep

    The lack of FDA approval for other brands has to do with a labeling issue, not a safety or efficacy issue. Basically the enzymes are a little "overstuffed", so the FDA is requiring them to relabel (ex: Creon 20 went to 24, as Harriett noted above). Other enzyme brands will likely be going...
  10. N

    Zenpep

    The lack of FDA approval for other brands has to do with a labeling issue, not a safety or efficacy issue. Basically the enzymes are a little "overstuffed", so the FDA is requiring them to relabel (ex: Creon 20 went to 24, as Harriett noted above). Other enzyme brands will likely be going...
  11. N

    Narcotics Pre-Transplant

    I'm listed for transplant (actually top of the list), and am on Ativan (controlled substance) for anxiety. It's low dose, granted, but I started having panic attacks earlier this year due to some of my health issues and my CF doc put me on it right away. Since then we have weaned the dose down...
  12. N

    Narcotics Pre-Transplant

    I'm listed for transplant (actually top of the list), and am on Ativan (controlled substance) for anxiety. It's low dose, granted, but I started having panic attacks earlier this year due to some of my health issues and my CF doc put me on it right away. Since then we have weaned the dose down...
  13. N

    Narcotics Pre-Transplant

    I'm listed for transplant (actually top of the list), and am on Ativan (controlled substance) for anxiety. It's low dose, granted, but I started having panic attacks earlier this year due to some of my health issues and my CF doc put me on it right away. Since then we have weaned the dose down...
  14. N

    Narcotics Pre-Transplant

    I'm listed for transplant (actually top of the list), and am on Ativan (controlled substance) for anxiety. It's low dose, granted, but I started having panic attacks earlier this year due to some of my health issues and my CF doc put me on it right away. Since then we have weaned the dose down...
  15. N

    Narcotics Pre-Transplant

    I'm listed for transplant (actually top of the list), and am on Ativan (controlled substance) for anxiety. It's low dose, granted, but I started having panic attacks earlier this year due to some of my health issues and my CF doc put me on it right away. Since then we have weaned the dose down...
  16. N

    Breathing help?

    Jess, If you think you may have high CO2, call your doctor. I know it's a hassle and embarrassing sometimes if nothing turns out to be wrong, but no CF doc should ever be annoyed at a patient for calling about something like that. Really the only way to tell about CO2 is an ABG test (yuck, I...
  17. N

    Breathing help?

    Jess, If you think you may have high CO2, call your doctor. I know it's a hassle and embarrassing sometimes if nothing turns out to be wrong, but no CF doc should ever be annoyed at a patient for calling about something like that. Really the only way to tell about CO2 is an ABG test (yuck, I...
  18. N

    Breathing help?

    Jess, If you think you may have high CO2, call your doctor. I know it's a hassle and embarrassing sometimes if nothing turns out to be wrong, but no CF doc should ever be annoyed at a patient for calling about something like that. Really the only way to tell about CO2 is an ABG test (yuck, I...
  19. N

    Breathing help?

    Jess, If you think you may have high CO2, call your doctor. I know it's a hassle and embarrassing sometimes if nothing turns out to be wrong, but no CF doc should ever be annoyed at a patient for calling about something like that. Really the only way to tell about CO2 is an ABG test (yuck, I...
  20. N

    Breathing help?

    Jess, <br /> <br />If you think you may have high CO2, call your doctor. I know it's a hassle and embarrassing sometimes if nothing turns out to be wrong, but no CF doc should ever be annoyed at a patient for calling about something like that. Really the only way to tell about CO2 is an ABG test...
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