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Thanks everybody, it's good to hear differing opinions and methods of 'coping' with our illness. Our docs are fairly backwards over here as far as all the new treatments are concerned - we are never involved in testing over here and like Ender, i rely on my own knowledge more than the docs. My...

Thanks everybody, it's good to hear differing opinions and methods of 'coping' with our illness. Our docs are fairly backwards over here as far as all the new treatments are concerned - we are never involved in testing over here and like Ender, i rely on my own knowledge more than the docs. My...

Thanks everybody, it's good to hear differing opinions and methods of 'coping' with our illness. Our docs are fairly backwards over here as far as all the new treatments are concerned - we are never involved in testing over here and like Ender, i rely on my own knowledge more than the docs. My...

Thanks everybody, it's good to hear differing opinions and methods of 'coping' with our illness. Our docs are fairly backwards over here as far as all the new treatments are concerned - we are never involved in testing over here and like Ender, i rely on my own knowledge more than the docs. My...

Thanks everybody, it's good to hear differing opinions and methods of 'coping' with our illness. Our docs are fairly backwards over here as far as all the new treatments are concerned - we are never involved in testing over here and like Ender, i rely on my own knowledge more than the docs. My...

Hi Diane, no I'm not, but i sometimes wonder if i should be, because i know quite a few others with cepacia seem to do what you do - permanent prophalactic oral ABs. although i don't really get nasty infections, i can't help wondering if the bugs are doing me damage, even though i can't...

Hi Diane, no I'm not, but i sometimes wonder if i should be, because i know quite a few others with cepacia seem to do what you do - permanent prophalactic oral ABs. although i don't really get nasty infections, i can't help wondering if the bugs are doing me damage, even though i can't...

Hi Diane, no I'm not, but i sometimes wonder if i should be, because i know quite a few others with cepacia seem to do what you do - permanent prophalactic oral ABs. although i don't really get nasty infections, i can't help wondering if the bugs are doing me damage, even though i can't...

Hi Diane, no I'm not, but i sometimes wonder if i should be, because i know quite a few others with cepacia seem to do what you do - permanent prophalactic oral ABs. although i don't really get nasty infections, i can't help wondering if the bugs are doing me damage, even though i can't...

Hi Diane, no I'm not, but i sometimes wonder if i should be, because i know quite a few others with cepacia seem to do what you do - permanent prophalactic oral ABs. although i don't really get nasty infections, i can't help wondering if the bugs are doing me damage, even though i can't...

Oh no not another one <img src="i/expressions/face-icon-small-sad.gif" border="0"> I recognise the log on name too. I hate this disease. May she rest in peace.

Oh no not another one <img src="i/expressions/face-icon-small-sad.gif" border="0"> I recognise the log on name too. I hate this disease. May she rest in peace.

Oh no not another one <img src="i/expressions/face-icon-small-sad.gif" border="0"> I recognise the log on name too. I hate this disease. May she rest in peace.

Oh no not another one <img src="i/expressions/face-icon-small-sad.gif" border="0"> I recognise the log on name too. I hate this disease. May she rest in peace.

Oh no not another one <img src="i/expressions/face-icon-small-sad.gif" border="0"> I recognise the log on name too. I hate this disease. May she rest in peace.

GRRR, sorry, i forgot to add the most important part of my story and the main source of my confusion - duh!! I am NOT a mild case - my lung function is only 45% on a good day, has been as low as 36%. The doctors are as confused as I am. When i had my first round of IVs they thought i was some...

GRRR, sorry, i forgot to add the most important part of my story and the main source of my confusion - duh!! I am NOT a mild case - my lung function is only 45% on a good day, has been as low as 36%. The doctors are as confused as I am. When i had my first round of IVs they thought i was some...

GRRR, sorry, i forgot to add the most important part of my story and the main source of my confusion - duh!! I am NOT a mild case - my lung function is only 45% on a good day, has been as low as 36%. The doctors are as confused as I am. When i had my first round of IVs they thought i was some...

GRRR, sorry, i forgot to add the most important part of my story and the main source of my confusion - duh!! I am NOT a mild case - my lung function is only 45% on a good day, has been as low as 36%. The doctors are as confused as I am. When i had my first round of IVs they thought i was some...

GRRR, sorry, i forgot to add the most important part of my story and the main source of my confusion - duh!! I am NOT a mild case - my lung function is only 45% on a good day, has been as low as 36%. The doctors are as confused as I am. When i had my first round of IVs they thought i was some...