Search results

Hi DianeOur daughter who is now 11 has Cepecia. Do you know the strain you have? We are now down to Meripenim (sp?) IV that is the last antibiotic that she has any sensitivity to. I just wanted to ask what all you were doing theropy wise as well. Saraazmoon3@msn.com<img...

Hi!Our daughter has CF... Last month the doctorse put her on TOBI for a month to work with another antiobiotic treatment..Well long story short we ended up not doing the TOBI so I have a box that I would love to give to someone that really needs it!!! It is in our fridge just takinging up room...

We are in the process now of looking at transplant. OUr daughter has cepecia. The hospital we are looking into is Duke...They seem to be the most recommended. The one thing that we foubnd out is that depending on the typwe of cepecia you have determins if they will except you or not....<img...

My daughter who has Cepecia just started Mon, Tues, Frid, on Zithromax. Has anyone else with cepecia found this to be helpful?

Our daughter has had Cepacia for a long while now. we are down to 2 iv drugs. One is the ceftazidine and the other meripinum...that is it! We are looking in to go to a center in Israel in March. It is in the Dead sea area and is supposed to be amazing and offer great results in increasing the...

I have been looking into going to a center in the dead sea. If you go to the web site cystic fibrosis Israel you can look into it as well. It sound wonderful and they have had great results..... If you put together a group of 7-8 they give a discount as well. This is a cf center!!!! Medical...