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See, CFF is a bit misleading on their whole 'life expectancy' thing. They don't actually say that the average life expectancy is 37... they say the PROJECTED median age of survival, the age at which half of those with 37 may be expected to live, is 37. This applies to those born now, not those...

See, CFF is a bit misleading on their whole 'life expectancy' thing. They don't actually say that the average life expectancy is 37... they say the PROJECTED median age of survival, the age at which half of those with 37 may be expected to live, is 37. This applies to those born now, not those...

See, CFF is a bit misleading on their whole 'life expectancy' thing. They don't actually say that the average life expectancy is 37... they say the PROJECTED median age of survival, the age at which half of those with 37 may be expected to live, is 37. This applies to those born now, not those...

Yes! My dd was a late dx as well- she was 7.5 by the time she was dx'ed. Growth failure was actually what led to her dx. She was chubby as a baby and toddler and then from age 3 onward stopped gaining and growing and started falling off the growth charts. <br> <br>She gained 8 pounds and grew...

Yes! My dd was a late dx as well- she was 7.5 by the time she was dx'ed. Growth failure was actually what led to her dx. She was chubby as a baby and toddler and then from age 3 onward stopped gaining and growing and started falling off the growth charts. <br> <br>She gained 8 pounds and grew...

Yes! My dd was a late dx as well- she was 7.5 by the time she was dx'ed. Growth failure was actually what led to her dx. She was chubby as a baby and toddler and then from age 3 onward stopped gaining and growing and started falling off the growth charts. <br> <br>She gained 8 pounds and grew...

Oh that really, REALLY sucks C!!! I am so sorry you were misled in what to expect after the surgery. :-( We were given literature to read and shown the actual tube on a doll and that was when I said there was no way I was doing that to my child, esp given it was summertime. The first button she...

Oh that really, REALLY sucks C!!! I am so sorry you were misled in what to expect after the surgery. :-( We were given literature to read and shown the actual tube on a doll and that was when I said there was no way I was doing that to my child, esp given it was summertime. The first button she...

Oh that really, REALLY sucks C!!! I am so sorry you were misled in what to expect after the surgery. :-( We were given literature to read and shown the actual tube on a doll and that was when I said there was no way I was doing that to my child, esp given it was summertime. The first button she...

<div class="FTQUOTE"><begin quote>I would disagree with the hurrying of the meds... as when I first got the invacare mobiliaire, I noticed how much more effective my treatments were and how much longer the meds seemed to last me (until I upped the pressure lol) !</end quote></div> I would like...

<div class="FTQUOTE"><begin quote>I would disagree with the hurrying of the meds... as when I first got the invacare mobiliaire, I noticed how much more effective my treatments were and how much longer the meds seemed to last me (until I upped the pressure lol) !</end quote> I would like to get...

<div class="FTQUOTE"><begin quote>I would disagree with the hurrying of the meds... as when I first got the invacare mobiliaire, I noticed how much more effective my treatments were and how much longer the meds seemed to last me (until I upped the pressure lol) !</end quote> <br />I would like...

<div class="FTQUOTE"><begin quote>I really question hurrying through our neb.</end quote></div> I agree with Scanboyd. Hypertonic saline takes about 15min (longer than any of our other meds for sure) but that is one I am not sure I'd want to rush either. That one is designed to hydrate the...

<div class="FTQUOTE"><begin quote>I really question hurrying through our neb.</end quote> I agree with Scanboyd. Hypertonic saline takes about 15min (longer than any of our other meds for sure) but that is one I am not sure I'd want to rush either. That one is designed to hydrate the mucus and...

<div class="FTQUOTE"><begin quote>I really question hurrying through our neb.</end quote> <br />I agree with Scanboyd. <br /> <br />Hypertonic saline takes about 15min (longer than any of our other meds for sure) but that is one I am not sure I'd want to rush either. That one is designed to...

I like the thought of approaching this from the standpoint of the impact chronic disease has had on your life and how it's affected your life decisions. I particularly like that because even if you've had CF taken off the table for you, the symptoms and life with chronic illness hasn't gone away...

I like the thought of approaching this from the standpoint of the impact chronic disease has had on your life and how it's affected your life decisions. I particularly like that because even if you've had CF taken off the table for you, the symptoms and life with chronic illness hasn't gone away...

I like the thought of approaching this from the standpoint of the impact chronic disease has had on your life and how it's affected your life decisions. I particularly like that because even if you've had CF taken off the table for you, the symptoms and life with chronic illness hasn't gone away...

Can you load an image of the CFF logo (white background) onto your computer, crop the edges just a little so it looks like it's 'floating' on just the white in the dimension/proportion of his flyer, open it with a program like Paint and use the fill (or whatever it's called) feature to turn the...

Can you load an image of the CFF logo (white background) onto your computer, crop the edges just a little so it looks like it's 'floating' on just the white in the dimension/proportion of his flyer, open it with a program like Paint and use the fill (or whatever it's called) feature to turn the...