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  1. H

    Suggestions about how to clean nebs on RV vacation

    If you don't want to bring one of the big pressure cookers- how about one of those electric hot plates that is the size of a single stove burner? (You can even buy it once you get there at a local dept. store for about $25.) Then you can boil nebs in bottled water that you buy once you get...
  2. H

    Suggestions about how to clean nebs on RV vacation

    If you don't want to bring one of the big pressure cookers- how about one of those electric hot plates that is the size of a single stove burner? (You can even buy it once you get there at a local dept. store for about $25.) Then you can boil nebs in bottled water that you buy once you get...
  3. H

    Suggestions about how to clean nebs on RV vacation

    If you don't want to bring one of the big pressure cookers- how about one of those electric hot plates that is the size of a single stove burner? (You can even buy it once you get there at a local dept. store for about $25.) Then you can boil nebs in bottled water that you buy once you get...
  4. H

    Nasal Potential Difference as Part of CF Dx process

    How did they explain the results of the test? Was the cftr function completely normal the 2nd time? I'm so sorry you are still stuck wondering, wondering, wondering- I hope you get the answers you need.
  5. H

    Nasal Potential Difference as Part of CF Dx process

    How did they explain the results of the test? Was the cftr function completely normal the 2nd time? I'm so sorry you are still stuck wondering, wondering, wondering- I hope you get the answers you need.
  6. H

    Nasal Potential Difference as Part of CF Dx process

    How did they explain the results of the test? Was the cftr function completely normal the 2nd time? <br /> <br />I'm so sorry you are still stuck wondering, wondering, wondering- I hope you get the answers you need.
  7. H

    CoughAssist machine?

    Interesting... Here's the link from the Respironics website about it. http://www.healthcare.philips.com/main/homehealth/respiratory_care/coughassist/default.wpd
  8. H

    A cure for CF

    Good article... more detail there than in what I've seen in the others! Thanks for sharing!
  9. H

    A cure for CF

    Good article... more detail there than in what I've seen in the others! Thanks for sharing!
  10. H

    A cure for CF

    Good article... more detail there than in what I've seen in the others! Thanks for sharing!
  11. H

    Nasal Potential Difference as Part of CF Dx process

    It would be worth finding out the score of her sweat test. Based on what you've told us so far about symptoms + her NPD results thus far, it sounds like she is headed for a dx.
  12. H

    Nasal Potential Difference as Part of CF Dx process

    It would be worth finding out the score of her sweat test. Based on what you've told us so far about symptoms + her NPD results thus far, it sounds like she is headed for a dx.
  13. H

    Nasal Potential Difference as Part of CF Dx process

    It would be worth finding out the score of her sweat test. <br /> <br />Based on what you've told us so far about symptoms + her NPD results thus far, it sounds like she is headed for a dx.
  14. H

    Nasal Potential Difference as Part of CF Dx process

    It would definitely be worth finding out if both mutations were on the same chromosome, since people can carry more than one and pass that single mutated gene on to their child (that is how the occasional baby with cf has 3 mutations.) That would not mean that one is benign but rather that you...
  15. H

    Nasal Potential Difference as Part of CF Dx process

    It would definitely be worth finding out if both mutations were on the same chromosome, since people can carry more than one and pass that single mutated gene on to their child (that is how the occasional baby with cf has 3 mutations.) That would not mean that one is benign but rather that you...
  16. H

    Nasal Potential Difference as Part of CF Dx process

    <p>It would definitely be worth finding out if both mutations were on the same chromosome, since people can carry more than one and pass that single mutated gene on to their child (that is how the occasional baby with cf has 3 mutations.) That would not mean that one is benign but rather that...
  17. H

    Nasal Potential Difference as Part of CF Dx process

    I personally feel it would be a good idea to have the NPD repeated considering you were not healthy when you had yours. Everything you can read online indicates that inflammation and irritation of the epithelial tissue can affect the results of the test significantly. I know, the dr you saw said...
  18. H

    Nasal Potential Difference as Part of CF Dx process

    I personally feel it would be a good idea to have the NPD repeated considering you were not healthy when you had yours. Everything you can read online indicates that inflammation and irritation of the epithelial tissue can affect the results of the test significantly. I know, the dr you saw said...
  19. H

    Nasal Potential Difference as Part of CF Dx process

    <p>I personally feel it would be a good idea to have the NPD repeated considering you were not healthy when you had yours. Everything you can read online indicates that inflammation and irritation of the epithelial tissue can affect the results of the test significantly. I know, the dr you saw...
  20. H

    Nasal Potential Difference as Part of CF Dx process

    Positive NPD results are used as acceptable criteria for CF diagnosis for acceptance into many clinical trials, so I would think that this would validate a dx, esp when combined with Owen being SO symptomatic. When Shawn had his test, the results were accompanied by a letter to the dr who sent...
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