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Oh my goodness, that is nuts!! Did the dr tell you that or one of the RT's? I'd print off some info that is published by the CFF itself and bring it to clinic to back up the need for sterilizing equipment. <br /> <br />When Emily was admitted the RT's were specifically instructed to provide...

Creon is now being manufactured by Abbott so the programs have changed- I would check out their website and see what they may be offering now. I found where they cover the cost of Creon in it's entirety to those who have no health insurance at all, but they may have a program similar to what...

Creon is now being manufactured by Abbott so the programs have changed- I would check out their website and see what they may be offering now. I found where they cover the cost of Creon in it's entirety to those who have no health insurance at all, but they may have a program similar to what...

Creon is now being manufactured by Abbott so the programs have changed- I would check out their website and see what they may be offering now. I found where they cover the cost of Creon in it's entirety to those who have no health insurance at all, but they may have a program similar to what...

The page is cut off due to the size of the photo. The text continues to the far edge. The site doesn't automatically resize images to be compatible to page layout.

The page is cut off due to the size of the photo. The text continues to the far edge. The site doesn't automatically resize images to be compatible to page layout.

The page is cut off due to the size of the photo. The text continues to the far edge. <br />The site doesn't automatically resize images to be compatible to page layout.

<div class="FTQUOTE"><begin quote>I know may daughter's CFTR mutation G542X is a stop codon so the most function she can have is 50% since one gene totally doesn't work. I guess that means that she falls in the 10% to 50% CFTR function that is not considered disease causing for CF.</end...

<div class="FTQUOTE"><begin quote>I know may daughter's CFTR mutation G542X is a stop codon so the most function she can have is 50% since one gene totally doesn't work. I guess that means that she falls in the 10% to 50% CFTR function that is not considered disease causing for CF.</end quote>...

<div class="FTQUOTE"><begin quote>I know may daughter's CFTR mutation G542X is a stop codon so the most function she can have is 50% since one gene totally doesn't work. I guess that means that she falls in the 10% to 50% CFTR function that is not considered disease causing for CF.</end quote>...

This is disappointing, but I fail to see how the CFF has anything to do with the decision of that European group. Fortunately, Bronchitol IS already approved in Australia. From the limited amount I was able to find, Pharmaxis plans on appealing this ruling with the CHMP, and they still will be...

This is disappointing, but I fail to see how the CFF has anything to do with the decision of that European group. Fortunately, Bronchitol IS already approved in Australia. From the limited amount I was able to find, Pharmaxis plans on appealing this ruling with the CHMP, and they still will be...

This is disappointing, but I fail to see how the CFF has anything to do with the decision of that European group. Fortunately, Bronchitol IS already approved in Australia. From the limited amount I was able to find, Pharmaxis plans on appealing this ruling with the CHMP, and they still will be...

I agree that someone with CF should be the one to explain the 3' rule and why it's important and show what will be worn by those with CF that day (to be distributed by someone else.) I love the thought of presenting whatever is to be worn as something being given to honor all those with CF...

I agree that someone with CF should be the one to explain the 3' rule and why it's important and show what will be worn by those with CF that day (to be distributed by someone else.) I love the thought of presenting whatever is to be worn as something being given to honor all those with CF...

I agree that someone with CF should be the one to explain the 3' rule and why it's important and show what will be worn by those with CF that day (to be distributed by someone else.) <br /> <br />I love the thought of presenting whatever is to be worn as something being given to honor all those...

That is an excellent point about the pinwheels, LouLou. <img src="i/expressions/face-icon-small-smile.gif" border="0"> What was given out at your walk to help identify those with CF? All they had at ours were these tiny rose stickers, which you could not see until you were right on top of...

That is an excellent point about the pinwheels, LouLou. <img src="i/expressions/face-icon-small-smile.gif" border="0"> What was given out at your walk to help identify those with CF? All they had at ours were these tiny rose stickers, which you could not see until you were right on top of...

<p>That is an excellent point about the pinwheels, LouLou. <img src="i/expressions/face-icon-small-smile.gif" border="0"> <br /> <br />What was given out at your walk to help identify those with CF? All they had at ours were these tiny rose stickers, which you could not see until you were right...

Oh goodness, no wonder it is so tight. I cannot believe they jammed a 1.2-1.5cm into an adult...!!! I agree that seeing a new GI is probably the best way to go at this point, but if you can't get in with a GI, a surgeon will be able to help since they do the procedure as well. We went through...