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  1. H

    Diagnosed at age 50

    If you aren't impressed with Yale, I'd encourage you to to give Hartford's center a try. <img src="i/expressions/face-icon-small-smile.gif" border="0"> I take my daughter to the ped side of the clinic up there and can't say enough good things about them. There is another member here who also...
  2. H

    Diagnosed at age 50

    If you aren't impressed with Yale, I'd encourage you to to give Hartford's center a try. <img src="i/expressions/face-icon-small-smile.gif" border="0"> I take my daughter to the ped side of the clinic up there and can't say enough good things about them. There is another member here who also...
  3. H

    Discovering New Foods

    Yay for food! <img src="i/expressions/face-icon-small-happy.gif" border="0"> It's so good seeing him being more open to experimenting with things he'd never touch before. <img src="i/expressions/face-icon-small-smile.gif" border="0"> Once they associate eating with pain, it's so hard to get past...
  4. H

    Discovering New Foods

    Yay for food! <img src="i/expressions/face-icon-small-happy.gif" border="0"> It's so good seeing him being more open to experimenting with things he'd never touch before. <img src="i/expressions/face-icon-small-smile.gif" border="0"> Once they associate eating with pain, it's so hard to get past...
  5. H

    Discovering New Foods

    Yay for food! <img src="i/expressions/face-icon-small-happy.gif" border="0"> It's so good seeing him being more open to experimenting with things he'd never touch before. <img src="i/expressions/face-icon-small-smile.gif" border="0"> Once they associate eating with pain, it's so hard to get past...
  6. H

    NPD test went terrible!!!!!!

    Here are a couple articles, the first a pretty comprehensive one of a study done in Germany and the 2nd of one done here at Chapel Hill: <a target=_blank class=ftalternatingbarlinklarge href="http://ajpgi.physiology.org/content/277/3/G709.full">CFTR-mediated inhibition of epithelial Na+...
  7. H

    NPD test went terrible!!!!!!

    Here are a couple articles, the first a pretty comprehensive one of a study done in Germany and the 2nd of one done here at Chapel Hill: <a target=_blank class=ftalternatingbarlinklarge href="http://ajpgi.physiology.org/content/277/3/G709.full">CFTR-mediated inhibition of epithelial Na+...
  8. H

    NPD test went terrible!!!!!!

    Here are a couple articles, the first a pretty comprehensive one of a study done in Germany and the 2nd of one done here at Chapel Hill: <br /><a target=_blank class=ftalternatingbarlinklarge href="http://ajpgi.physiology.org/content/277/3/G709.full">CFTR-mediated inhibition of epithelial Na+...
  9. H

    NPD test went terrible!!!!!!

    Yes, cftr testing has been done on colon tissue. I will see if I can find a link. If her GI surgery is being done at the same hospital that offers the NPD testing, I would see if they can try NPD again while she's already sedated. I'm so sorry the test was so hard on your daughter! <img...
  10. H

    NPD test went terrible!!!!!!

    Yes, cftr testing has been done on colon tissue. I will see if I can find a link. If her GI surgery is being done at the same hospital that offers the NPD testing, I would see if they can try NPD again while she's already sedated. I'm so sorry the test was so hard on your daughter! <img...
  11. H

    NPD test went terrible!!!!!!

    Yes, cftr testing has been done on colon tissue. I will see if I can find a link. If her GI surgery is being done at the same hospital that offers the NPD testing, I would see if they can try NPD again while she's already sedated. <br /> <br />I'm so sorry the test was so hard on your daughter...
  12. H

    Vertex drugs show promise with DF508

    Thank you Kristen! That makes sense. Even if the first study was slightly longer, that was a very substantial difference and I am sure the investors did look at that. <br> <br><div class="FTQUOTE"><begin quote>Doing some simple math ( (8*15 + 4*20 + 5*x)/17=13 ) I received following results...
  13. H

    Vertex drugs show promise with DF508

    Thank you Kristen! That makes sense. Even if the first study was slightly longer, that was a very substantial difference and I am sure the investors did look at that. <br> <br><div class="FTQUOTE"><begin quote>Doing some simple math ( (8*15 + 4*20 + 5*x)/17=13 ) I received following results...
  14. H

    Vertex drugs show promise with DF508

    Thank you Kristen! That makes sense. Even if the first study was slightly longer, that was a very substantial difference and I am sure the investors did look at that. <br> <br><div class="FTQUOTE"><begin quote>Doing some simple math ( (8*15 + 4*20 + 5*x)/17=13 ) I received following results...
  15. H

    Vertex drugs show promise with DF508

    How much did sweat chloride levels drop during the same stage of the trial process w/ 770? If there was an early, much larger response in sweat chloride levels in those on 770 alone (the G551D population) is it due to comparison between the two trials that there wasn't a different response on...
  16. H

    Vertex drugs show promise with DF508

    How much did sweat chloride levels drop during the same stage of the trial process w/ 770? If there was an early, much larger response in sweat chloride levels in those on 770 alone (the G551D population) is it due to comparison between the two trials that there wasn't a different response on...
  17. H

    Vertex drugs show promise with DF508

    How much did sweat chloride levels drop during the same stage of the trial process w/ 770? If there was an early, much larger response in sweat chloride levels in those on 770 alone (the G551D population) is it due to comparison between the two trials that there wasn't a different response on...
  18. H

    yearly bronchs

    Emily is having a bronch done on Friday for the first time, but her center does not perform them on a routine basis- only if there is specific need for it. In her case, her lung function has declined over the course of the last year and we have not been able to figure out why. We want to see if...
  19. H

    yearly bronchs

    Emily is having a bronch done on Friday for the first time, but her center does not perform them on a routine basis- only if there is specific need for it. In her case, her lung function has declined over the course of the last year and we have not been able to figure out why. We want to see if...
  20. H

    yearly bronchs

    Emily is having a bronch done on Friday for the first time, but her center does not perform them on a routine basis- only if there is specific need for it. In her case, her lung function has declined over the course of the last year and we have not been able to figure out why. We want to see if...
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