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  1. H

    Got the boot from BABY CF CLINIC DAY

    Wow, given the uncertainty of the accuracy of sputum cultures at times, I am amazed that drs are that lax in gowning and gloving...! When Emily was inpatient, everyone that entered her room- from the people who cleaned her room to nurses to rt's to doctors- gowned and gloved. She had to wear a...
  2. H

    Got the boot from BABY CF CLINIC DAY

    Wow, given the uncertainty of the accuracy of sputum cultures at times, I am amazed that drs are that lax in gowning and gloving...! When Emily was inpatient, everyone that entered her room- from the people who cleaned her room to nurses to rt's to doctors- gowned and gloved. She had to wear a...
  3. H

    Got the boot from BABY CF CLINIC DAY

    Wow, given the uncertainty of the accuracy of sputum cultures at times, I am amazed that drs are that lax in gowning and gloving...! <br /> <br />When Emily was inpatient, everyone that entered her room- from the people who cleaned her room to nurses to rt's to doctors- gowned and gloved. She...
  4. H

    Got the boot from BABY CF CLINIC DAY

    Where did they remind you to put the mask on him- out in the hall/waiting area or in the actual exam room? To be honest if it was out of the exam room, it was likely more in protection of the babies, since he is older, into more stuff, and more likely to carry bugs than the babies whether or not...
  5. H

    Got the boot from BABY CF CLINIC DAY

    Where did they remind you to put the mask on him- out in the hall/waiting area or in the actual exam room? To be honest if it was out of the exam room, it was likely more in protection of the babies, since he is older, into more stuff, and more likely to carry bugs than the babies whether or not...
  6. H

    Got the boot from BABY CF CLINIC DAY

    Where did they remind you to put the mask on him- out in the hall/waiting area or in the actual exam room? To be honest if it was out of the exam room, it was likely more in protection of the babies, since he is older, into more stuff, and more likely to carry bugs than the babies whether or not...
  7. H

    Vertex drugs show promise with DF508

    <div class="FTQUOTE"><begin quote>I am looking forward to seeing whats done for the F508's</end quote></div> That is who we are talking about- the only people involved in the current combination trial for 770+809 are double DF508's.
  8. H

    Vertex drugs show promise with DF508

    <div class="FTQUOTE"><begin quote>I am looking forward to seeing whats done for the F508's</end quote> That is who we are talking about- the only people involved in the current combination trial for 770+809 are double DF508's.
  9. H

    Vertex drugs show promise with DF508

    <div class="FTQUOTE"><begin quote>I am looking forward to seeing whats done for the F508's</end quote> <br /> <br />That is who we are talking about- the only people involved in the current combination trial for 770+809 are double DF508's.
  10. H

    How Long Should Amby Test Take?

    Emily's took a month, my boys took about 5wks. You should be hearing any time now! Hoping the very best.
  11. H

    How Long Should Amby Test Take?

    Emily's took a month, my boys took about 5wks. You should be hearing any time now! Hoping the very best.
  12. H

    How Long Should Amby Test Take?

    Emily's took a month, my boys took about 5wks. You should be hearing any time now! Hoping the very best.
  13. H

    Diagnosed at age 50

    Actually, as the article states, it's worldwide prevalence is less than .1% (and this is the case for nearly all mutations, from mild to severe- only a small handful have higher prevalence) ...it's higher prevalence is only found in certain populations, as is seen with a few others...
  14. H

    Diagnosed at age 50

    Actually, as the article states, it's worldwide prevalence is less than .1% (and this is the case for nearly all mutations, from mild to severe- only a small handful have higher prevalence) ...it's higher prevalence is only found in certain populations, as is seen with a few others...
  15. H

    Diagnosed at age 50

    Actually, as the article states, it's worldwide prevalence is less than .1% (and this is the case for nearly all mutations, from mild to severe- only a small handful have higher prevalence) ...it's higher prevalence is only found in certain populations, as is seen with a few others...
  16. H

    Diagnosed at age 50

    Quest includes R334W on their 23-mutation panel and Mayo includes it on their 106 mutation panel. They are NOT included on the list as polymorphisms, ones flagged as only significant for cbavd, or otherwise 'benign' variants.
  17. H

    Diagnosed at age 50

    Quest includes R334W on their 23-mutation panel and Mayo includes it on their 106 mutation panel. They are NOT included on the list as polymorphisms, ones flagged as only significant for cbavd, or otherwise 'benign' variants.
  18. H

    Diagnosed at age 50

    Quest includes R334W on their 23-mutation panel and Mayo includes it on their 106 mutation panel. They are NOT included on the list as polymorphisms, ones flagged as only significant for cbavd, or otherwise 'benign' variants.
  19. H

    Diagnosed at age 50

    A citation taken from an article discussing 12 cases of those with the R334W mutation (most of whom also had the DF508 mutation.) Full article can be found here: <a target=_blank class=ftalternatingbarlinklarge...
  20. H

    Diagnosed at age 50

    A citation taken from an article discussing 12 cases of those with the R334W mutation (most of whom also had the DF508 mutation.) Full article can be found here: <a target=_blank class=ftalternatingbarlinklarge...
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