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  1. H

    increasing stomach pains and accidents

    Shiny sounds to me like fat. I know that is what we see, anyway... and when enzymes are working well even if it's still somewhat soft and thick it's more dull in appearance, not shiny. Hard to describe but a clear difference. And they stay much more formed in the toilet and sink. If she'd agree...
  2. H

    increasing stomach pains and accidents

    Shiny sounds to me like fat. I know that is what we see, anyway... and when enzymes are working well even if it's still somewhat soft and thick it's more dull in appearance, not shiny. Hard to describe but a clear difference. And they stay much more formed in the toilet and sink. If she'd agree...
  3. H

    increasing stomach pains and accidents

    Shiny sounds to me like fat. I know that is what we see, anyway... and when enzymes are working well even if it's still somewhat soft and thick it's more dull in appearance, not shiny. Hard to describe but a clear difference. And they stay much more formed in the toilet and sink. If she'd agree...
  4. H

    increasing stomach pains and accidents

    I would wonder about both changing PS/PI as well as the possibility of an obstruction. Not to sound overly gross, but what does the stool look like when you clean up her accidents? Does it seem 'shiny' or greasy? I'd also try to get a look at what she's pooping before she flushes, too. It makes...
  5. H

    increasing stomach pains and accidents

    I would wonder about both changing PS/PI as well as the possibility of an obstruction. Not to sound overly gross, but what does the stool look like when you clean up her accidents? Does it seem 'shiny' or greasy? I'd also try to get a look at what she's pooping before she flushes, too. It makes...
  6. H

    increasing stomach pains and accidents

    I would wonder about both changing PS/PI as well as the possibility of an obstruction. Not to sound overly gross, but what does the stool look like when you clean up her accidents? Does it seem 'shiny' or greasy? I'd also try to get a look at what she's pooping before she flushes, too. It makes...
  7. H

    My daughter is having the nasal potential difference test next thurs.

    I wish the very best!! My son had the NPD to try and determine whether he was a carrier or if he had CF, and due to normal results has been deemed a 'symptomatic carrier.' He had 3 sweat tests, ranging from 30,48,54 and has pretty significant asthma (fev1 in lower 70's when asymptomatic.)...
  8. H

    My daughter is having the nasal potential difference test next thurs.

    I wish the very best!! My son had the NPD to try and determine whether he was a carrier or if he had CF, and due to normal results has been deemed a 'symptomatic carrier.' He had 3 sweat tests, ranging from 30,48,54 and has pretty significant asthma (fev1 in lower 70's when asymptomatic.)...
  9. H

    My daughter is having the nasal potential difference test next thurs.

    I wish the very best!! <br /> <br />My son had the NPD to try and determine whether he was a carrier or if he had CF, and due to normal results has been deemed a 'symptomatic carrier.' <br /> <br />He had 3 sweat tests, ranging from 30,48,54 and has pretty significant asthma (fev1 in lower 70's...
  10. H

    I disagree

    <div class="FTQUOTE"><begin quote>Sorry to those of you that compulsively sterilize, but there are more germs on your skin than that neb and you still kiss your kids.</end quote></div> True, but our kids aren't aerosolizing(sp) what's on our skin and inhaling it straight into their lungs. Maybe...
  11. H

    I disagree

    <div class="FTQUOTE"><begin quote>Sorry to those of you that compulsively sterilize, but there are more germs on your skin than that neb and you still kiss your kids.</end quote> True, but our kids aren't aerosolizing(sp) what's on our skin and inhaling it straight into their lungs. Maybe...
  12. H

    I disagree

    <div class="FTQUOTE"><begin quote>Sorry to those of you that compulsively sterilize, but there are more germs on your skin than that neb and you still kiss your kids.</end quote> <br />True, but our kids aren't aerosolizing(sp) what's on our skin and inhaling it straight into their lungs. Maybe...
  13. H

    I disagree

    An interesting article. The study is small, but the percentages involved make it clear that keeping your stuff clean is important! <a target=_blank class=ftalternatingbarlinklarge href="http://www.ncbi.nlm.nih.gov/pubmed/17584406">Microbial contamination of nebulizers in the home treatment of...
  14. H

    I disagree

    An interesting article. The study is small, but the percentages involved make it clear that keeping your stuff clean is important! <a target=_blank class=ftalternatingbarlinklarge href="http://www.ncbi.nlm.nih.gov/pubmed/17584406">Microbial contamination of nebulizers in the home treatment of...
  15. H

    I disagree

    An interesting article. The study is small, but the percentages involved make it clear that keeping your stuff clean is important! <a target=_blank class=ftalternatingbarlinklarge href="http://www.ncbi.nlm.nih.gov/pubmed/17584406">Microbial contamination of nebulizers in the home treatment of...
  16. H

    just spilled an entire vile of TOBI

    Yes, the compressor matters. You need one with a strong enough PSI in order to break the medicine into a fine enough mist. For TOBI, if you don't have one of the ones listed, you want one with comparable PSI. If you have one not listed, you can find out the average/operating PSI in the manual...
  17. H

    just spilled an entire vile of TOBI

    Yes, the compressor matters. You need one with a strong enough PSI in order to break the medicine into a fine enough mist. For TOBI, if you don't have one of the ones listed, you want one with comparable PSI. If you have one not listed, you can find out the average/operating PSI in the manual...
  18. H

    just spilled an entire vile of TOBI

    Yes, the compressor matters. You need one with a strong enough PSI in order to break the medicine into a fine enough mist. For TOBI, if you don't have one of the ones listed, you want one with comparable PSI. If you have one not listed, you can find out the average/operating PSI in the manual...
  19. H

    I disagree

    Oh my goodness, that is nuts!! Did the dr tell you that or one of the RT's? I'd print off some info that is published by the CFF itself and bring it to clinic to back up the need for sterilizing equipment. When Emily was admitted the RT's were specifically instructed to provide fresh neb cups...
  20. H

    I disagree

    Oh my goodness, that is nuts!! Did the dr tell you that or one of the RT's? I'd print off some info that is published by the CFF itself and bring it to clinic to back up the need for sterilizing equipment. When Emily was admitted the RT's were specifically instructed to provide fresh neb cups...
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