My daughter is having the nasal potential difference test next thurs.

[Mistyjo]

<P>My daughter is having the nasal potential difference test next thurs.  Any advice and experience is greatly appreciated!  </P>
<P>I've posted before but will give a brief background.  </P>
<P>two borderline sweat test 41 and 50</P>
<P>one disease causing cf gene mutation and another cf gene mutation that is not suppose to be disease causing.</P>
<P>failure to thrive and chronic constipation</P>
<P>cousin with cf, maternal grandmother with pulmonary fibrosis, chronic pneumonia, sever GI probs.</P>
<P>All of her tests have come back normal expect for low vitamin D.  Fecal elestase is normal.</P>
<P>Thank you for your time!!</P>

 

[Mistyjo]

<P>My daughter is having the nasal potential difference test next thurs. Any advice and experience is greatly appreciated! </P>
<P>I've posted before but will give a brief background. </P>
<P>two borderline sweat test 41 and 50</P>
<P>one disease causing cf gene mutation and another cf gene mutation that is not suppose to be disease causing.</P>
<P>failure to thrive and chronic constipation</P>
<P>cousin with cf, maternal grandmother with pulmonary fibrosis, chronic pneumonia, sever GI probs.</P>
<P>All of her tests have come back normal expect for low vitamin D. Fecal elestase is normal.</P>
<P>Thank you for your time!!</P>

 

[Mistyjo]

<P><BR>My daughter is having the nasal potential difference test next thurs. Any advice and experience is greatly appreciated! </P>
<P>I've posted before but will give a brief background. </P>
<P>two borderline sweat test 41 and 50</P>
<P>one disease causing cf gene mutation and another cf gene mutation that is not suppose to be disease causing.</P>
<P>failure to thrive and chronic constipation</P>
<P>cousin with cf, maternal grandmother with pulmonary fibrosis, chronic pneumonia, sever GI probs.</P>
<P>All of her tests have come back normal expect for low vitamin D. Fecal elestase is normal.</P>
<P>Thank you for your time!!</P>

 

[hmw]

I wish the very best!!

My son had the NPD to try and determine whether he was a carrier or if he had CF, and due to normal results has been deemed a 'symptomatic carrier.'

He had 3 sweat tests, ranging from 30,48,54 and has pretty significant asthma (fev1 in lower 70's when asymptomatic.) He's never had fecal testing, but is quite low on the growth charts. However- his bone age came back delayed a year when the endo checked it- so when you look at the charts for his age minus a year, his growth looks much more reassuring. He also has low vitD, but I don't think any other fat soluble vitamins were checked in the labs the endo ordered. As a followup to the low D, the endo ordered some other levels that I haven't heard about yet (an expanded calcium and magnesium panel, and a different vit D, I think, and a few other things.) I will let you know what I hear about that if you would like.

 

[hmw]

I wish the very best!!

My son had the NPD to try and determine whether he was a carrier or if he had CF, and due to normal results has been deemed a 'symptomatic carrier.'

He had 3 sweat tests, ranging from 30,48,54 and has pretty significant asthma (fev1 in lower 70's when asymptomatic.) He's never had fecal testing, but is quite low on the growth charts. However- his bone age came back delayed a year when the endo checked it- so when you look at the charts for his age minus a year, his growth looks much more reassuring. He also has low vitD, but I don't think any other fat soluble vitamins were checked in the labs the endo ordered. As a followup to the low D, the endo ordered some other levels that I haven't heard about yet (an expanded calcium and magnesium panel, and a different vit D, I think, and a few other things.) I will let you know what I hear about that if you would like.

 

[hmw]

I wish the very best!!
<br />
<br />My son had the NPD to try and determine whether he was a carrier or if he had CF, and due to normal results has been deemed a 'symptomatic carrier.'
<br />
<br />He had 3 sweat tests, ranging from 30,48,54 and has pretty significant asthma (fev1 in lower 70's when asymptomatic.) He's never had fecal testing, but is quite low on the growth charts. However- his bone age came back delayed a year when the endo checked it- so when you look at the charts for his age minus a year, his growth looks much more reassuring. He also has low vitD, but I don't think any other fat soluble vitamins were checked in the labs the endo ordered. As a followup to the low D, the endo ordered some other levels that I haven't heard about yet (an expanded calcium and magnesium panel, and a different vit D, I think, and a few other things.) I will let you know what I hear about that if you would like.

 

[Beccamom]

My DD had the NPD test twice.  If your DD is at all sick before the test I would reschedule it because that was why my DD had to do it twice.  The test itself took about 1 1/2 hours.  We requested numbing cream for the IV needle, but most don't need it since it is a very small needle and goes just under the skin.  My DD was not opposed to the 2nd NPD test, so I took it that it was not that bad.  I did bring her I-touch and she could watch TV a bit, but with the liquids constantly dripping from the nose she couldn't play any games.  I ended up reading to my DD the 2nd time and I think that made the time go faster for her.  Best wishes. 

 

[Beccamom]

My DD had the NPD test twice. If your DD is at all sick before the test I would reschedule it because that was why my DD had to do it twice. The test itself took about 1 1/2 hours. We requested numbing cream for the IV needle, but most don't need it since it is a very small needle and goes just under the skin. My DD was not opposed to the 2nd NPD test, so I took it that it was not that bad. I did bring her I-touch and she could watch TV a bit, but with the liquids constantly dripping from the nose she couldn't play any games. I ended up reading to my DD the 2nd time and I think that made the time go faster for her. Best wishes.

 

[Beccamom]

<BR>My DD had the NPD test twice. If your DD is at all sick before the test I would reschedule it because that was why my DD had to do it twice. The test itself took about 1 1/2 hours. We requested numbing cream for the IV needle, but most don't need it since it is a very small needle and goes just under the skin. My DD was not opposed to the 2nd NPD test, so I took it that it was not that bad. I did bring her I-touch and she could watch TV a bit, but with the liquids constantly dripping from the nose she couldn't play any games. I ended up reading to my DD the 2nd time and I think that made the time go faster for her. Best wishes.

 

[Mistyjo]

Thanks for the replies. Harriett that would be great if you will keep me updated about his vit d level. I want her's rechecked in a couple months.

 

[Mistyjo]

Thanks for the replies. Harriett that would be great if you will keep me updated about his vit d level. I want her's rechecked in a couple months.

 

[Mistyjo]

Thanks for the replies. Harriett that would be great if you will keep me updated about his vit d level. I want her's rechecked in a couple months.