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  1. H

    G-Tube Button options

    Oh goodness, no wonder it is so tight. I cannot believe they jammed a 1.2-1.5cm into an adult...!!! I agree that seeing a new GI is probably the best way to go at this point, but if you can't get in with a GI, a surgeon will be able to help since they do the procedure as well. We went through...
  2. H

    G-Tube Button options

    Oh goodness, no wonder it is so tight. I cannot believe they jammed a 1.2-1.5cm into an adult...!!! <br /> <br />I agree that seeing a new GI is probably the best way to go at this point, but if you can't get in with a GI, a surgeon will be able to help since they do the procedure as well. We...
  3. H

    G-Tube Button options

    If adding the extra water is making the button so uncomfortably tight, I do think it's worth a try a longer one. Emily's first one was 1.2cm and was SO tight against her skin and nearly impossible to turn, her current one is 1.7cm and a much better fit. Can you try a different supply company...
  4. H

    G-Tube Button options

    If adding the extra water is making the button so uncomfortably tight, I do think it's worth a try a longer one. Emily's first one was 1.2cm and was SO tight against her skin and nearly impossible to turn, her current one is 1.7cm and a much better fit. Can you try a different supply company...
  5. H

    G-Tube Button options

    If adding the extra water is making the button so uncomfortably tight, I do think it's worth a try a longer one. Emily's first one was 1.2cm and was SO tight against her skin and nearly impossible to turn, her current one is 1.7cm and a much better fit. Can you try a different supply company...
  6. H

    Considering a second child...What did you do?

    This is a very very delicate issue and most people have pretty strong feelings about it. Everyone has to go with what they personally feel is right for their family... I'll just share some thoughts of my own after reading through the many posts here. My version of the 'everything happens for a...
  7. H

    Considering a second child...What did you do?

    This is a very very delicate issue and most people have pretty strong feelings about it. Everyone has to go with what they personally feel is right for their family... I'll just share some thoughts of my own after reading through the many posts here. My version of the 'everything happens for a...
  8. H

    Considering a second child...What did you do?

    This is a very very delicate issue and most people have pretty strong feelings about it. Everyone has to go with what they personally feel is right for their family... I'll just share some thoughts of my own after reading through the many posts here. <br /> <br />My version of the 'everything...
  9. H

    Complications of Failure to Thrive

    Re. the pain for months in the knees- people with CF can also have joint pain. This is a new issue for my daughter and she's feeling it particularly in her ankles and knees. I was watching her at dance last night and she particularly struggled through ballet; the jumps and turns and anything...
  10. H

    Complications of Failure to Thrive

    Re. the pain for months in the knees- people with CF can also have joint pain. This is a new issue for my daughter and she's feeling it particularly in her ankles and knees. I was watching her at dance last night and she particularly struggled through ballet; the jumps and turns and anything...
  11. H

    Complications of Failure to Thrive

    Re. the pain for months in the knees- people with CF can also have joint pain. This is a new issue for my daughter and she's feeling it particularly in her ankles and knees. I was watching her at dance last night and she particularly struggled through ballet; the jumps and turns and anything...
  12. H

    b12bc passed away

    Oh I am so sorry to see this! <img src="i/expressions/face-icon-small-sad.gif" border="0"> My thoughts and prayers are with Melody's family and loved ones today...
  13. H

    b12bc passed away

    Oh I am so sorry to see this! <img src="i/expressions/face-icon-small-sad.gif" border="0"> My thoughts and prayers are with Melody's family and loved ones today...
  14. H

    b12bc passed away

    Oh I am so sorry to see this! <img src="i/expressions/face-icon-small-sad.gif" border="0"> My thoughts and prayers are with Melody's family and loved ones today...
  15. H

    Rogue cars, buses, and other cliches.

    <div class="FTQUOTE"><begin quote>The bus one gets to me also. My daughter is pretty healthy for the most part, so we live a fairly normal life and are not going around depressed over her disease. But sometimes, especially when someone from one of the CF forums passes, I can get a little down...
  16. H

    Rogue cars, buses, and other cliches.

    <div class="FTQUOTE"><begin quote>The bus one gets to me also. My daughter is pretty healthy for the most part, so we live a fairly normal life and are not going around depressed over her disease. But sometimes, especially when someone from one of the CF forums passes, I can get a little down...
  17. H

    Rogue cars, buses, and other cliches.

    <p><div class="FTQUOTE"><begin quote>The bus one gets to me also. My daughter is pretty healthy for the most part, so we live a fairly normal life and are not going around depressed over her disease. But sometimes, especially when someone from one of the CF forums passes, I can get a little down...
  18. H

    My Friend needs Suggestions

    Odds are, if he is not growing and gaining consuming 3,000cal/day, it's going to be really hard getting another 1,000cal into him without severely restricting actual NUTRITIOUS food. Like fruits and vegetables and grains and the real food we need to be healthy in the long term. You do reach a...
  19. H

    My Friend needs Suggestions

    Odds are, if he is not growing and gaining consuming 3,000cal/day, it's going to be really hard getting another 1,000cal into him without severely restricting actual NUTRITIOUS food. Like fruits and vegetables and grains and the real food we need to be healthy in the long term. You do reach a...
  20. H

    My Friend needs Suggestions

    Odds are, if he is not growing and gaining consuming 3,000cal/day, it's going to be really hard getting another 1,000cal into him without severely restricting actual NUTRITIOUS food. Like fruits and vegetables and grains and the real food we need to be healthy in the long term. You do reach a...
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