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  1. H

    Is Nightwriter still on these forums?

    I sent a pm... my reply got far too long to post. <img src="i/expressions/face-icon-small-wink.gif" border="0">
  2. H

    Is Nightwriter still on these forums?

    I sent a pm... my reply got far too long to post. <img src="i/expressions/face-icon-small-wink.gif" border="0">
  3. H

    Is Nightwriter still on these forums?

    I sent a pm... my reply got far too long to post. <img src="i/expressions/face-icon-small-wink.gif" border="0">
  4. H

    A cure for CF

    I have the feeling this kid has signed a privacy clause as to the results of this project in the interests of potentially being able to develop it as an actual treatment ...what he did no doubt cost a lot of money (using this computer system and the biology project testing the compounds on...
  5. H

    A cure for CF

    I have the feeling this kid has signed a privacy clause as to the results of this project in the interests of potentially being able to develop it as an actual treatment ...what he did no doubt cost a lot of money (using this computer system and the biology project testing the compounds on...
  6. H

    A cure for CF

    <p>I have the feeling this kid has signed a privacy clause as to the results of this project in the interests of potentially being able to develop it as an actual treatment ...what he did no doubt cost a lot of money (using this computer system and the biology project testing the compounds on...
  7. H

    What should I do?

    The only med I've heard of doing for the first time in-office on a routine basis is hypertonic saline... never heard of it for Tobi or anything else. If this were my child, I'd hate to wait- I agree with calling the dr to check on this and make sure there wasn't a miscommunication and/or to see...
  8. H

    What should I do?

    The only med I've heard of doing for the first time in-office on a routine basis is hypertonic saline... never heard of it for Tobi or anything else. If this were my child, I'd hate to wait- I agree with calling the dr to check on this and make sure there wasn't a miscommunication and/or to see...
  9. H

    What should I do?

    The only med I've heard of doing for the first time in-office on a routine basis is hypertonic saline... never heard of it for Tobi or anything else. If this were my child, I'd hate to wait- I agree with calling the dr to check on this and make sure there wasn't a miscommunication and/or to see...
  10. H

    Nasal Potential Difference as Part of CF Dx process

    At this point, the NPD is very rarely done unless all other tests (newborn screen, sweat test, genetic sequencing, etc) are not able to yield conclusive answers. Out of the well over 100 accredited centers in the US we were told fewer than 20 of them even have the equipment & trained staff to...
  11. H

    Nasal Potential Difference as Part of CF Dx process

    At this point, the NPD is very rarely done unless all other tests (newborn screen, sweat test, genetic sequencing, etc) are not able to yield conclusive answers. Out of the well over 100 accredited centers in the US we were told fewer than 20 of them even have the equipment & trained staff to...
  12. H

    Nasal Potential Difference as Part of CF Dx process

    At this point, the NPD is very rarely done unless all other tests (newborn screen, sweat test, genetic sequencing, etc) are not able to yield conclusive answers. Out of the well over 100 accredited centers in the US we were told fewer than 20 of them even have the equipment & trained staff to...
  13. H

    Question....bruising easy and CF

    I'd also want his liver enzymes checked as well as hemoglobin.
  14. H

    Question....bruising easy and CF

    I'd also want his liver enzymes checked as well as hemoglobin.
  15. H

    Question....bruising easy and CF

    I'd also want his liver enzymes checked as well as hemoglobin.
  16. H

    Nasal Potential Difference as Part of CF Dx process

    Shawn loved the fact that he created a complete electrical circuit once he was hooked up, lol... he's quite the little scientist. <img src="i/expressions/face-icon-small-smile.gif" border="0"> He did not have any pain with the needle on his arm; it is placed very shallow, barely under the skin...
  17. H

    Nasal Potential Difference as Part of CF Dx process

    Shawn loved the fact that he created a complete electrical circuit once he was hooked up, lol... he's quite the little scientist. <img src="i/expressions/face-icon-small-smile.gif" border="0"> He did not have any pain with the needle on his arm; it is placed very shallow, barely under the skin...
  18. H

    Nasal Potential Difference as Part of CF Dx process

    Shawn loved the fact that he created a complete electrical circuit once he was hooked up, lol... he's quite the little scientist. <img src="i/expressions/face-icon-small-smile.gif" border="0"> He did not have any pain with the needle on his arm; it is placed very shallow, barely under the skin...
  19. H

    Nasal Potential Difference as Part of CF Dx process

    We were told the same thing you were- that illness could yield results falsely indicative of 'no cf' due to how the swelling etc affects the tissues lining the nasal passages. When my son had his scheduled, the nurse checked in with us regarding his health several times in the weeks preceding...
  20. H

    Nasal Potential Difference as Part of CF Dx process

    We were told the same thing you were- that illness could yield results falsely indicative of 'no cf' due to how the swelling etc affects the tissues lining the nasal passages. When my son had his scheduled, the nurse checked in with us regarding his health several times in the weeks preceding...
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