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  1. C

    I've been matched!

    Julie, you are amazing! What a wonderful gift you are giving someone <img src="i/expressions/present.gif" border="0">
  2. C

    I've been matched!

    Julie, you are amazing! What a wonderful gift you are giving someone <img src="i/expressions/present.gif" border="0">
  3. C

    I've been matched!

    Julie, you are amazing! What a wonderful gift you are giving someone <img src="i/expressions/present.gif" border="0">
  4. C

    I've been matched!

    Julie, you are amazing! What a wonderful gift you are giving someone <img src="i/expressions/present.gif" border="0">
  5. C

    I've been matched!

    Julie, you are amazing! What a wonderful gift you are giving someone <img src="i/expressions/present.gif" border="0">
  6. C

    When and how do I tell her?

    <div class="FTQUOTE"><begin quote>I would NEVER....and I mean NEVER tell Courtney she can not do something because of her CF. As she gets older she will realize her own limits. What kind of parent would I be if I told her "you can't be/do ______ because you have CF". I think that is TERRIBLE...
  7. C

    When and how do I tell her?

    <div class="FTQUOTE"><begin quote>I would NEVER....and I mean NEVER tell Courtney she can not do something because of her CF. As she gets older she will realize her own limits. What kind of parent would I be if I told her "you can't be/do ______ because you have CF". I think that is TERRIBLE...
  8. C

    When and how do I tell her?

    <div class="FTQUOTE"><begin quote>I would NEVER....and I mean NEVER tell Courtney she can not do something because of her CF. As she gets older she will realize her own limits. What kind of parent would I be if I told her "you can't be/do ______ because you have CF". I think that is TERRIBLE...
  9. C

    When and how do I tell her?

    <div class="FTQUOTE"><begin quote>I would NEVER....and I mean NEVER tell Courtney she can not do something because of her CF. As she gets older she will realize her own limits. What kind of parent would I be if I told her "you can't be/do ______ because you have CF". I think that is TERRIBLE...
  10. C

    When and how do I tell her?

    <div class="FTQUOTE"><begin quote>I would NEVER....and I mean NEVER tell Courtney she can not do something because of her CF. As she gets older she will realize her own limits. What kind of parent would I be if I told her "you can't be/do ______ because you have CF". I think that is TERRIBLE...
  11. C

    When and how do I tell her?

    100% with Em on this one. Like Em, Sean has always known. We always took every opportunity to educate him and his brother about CF. In fact, it was usually his older brother that sparked a lot of our conversations. Five may seem young to try and explain the realities of the disease to but...
  12. C

    When and how do I tell her?

    100% with Em on this one. Like Em, Sean has always known. We always took every opportunity to educate him and his brother about CF. In fact, it was usually his older brother that sparked a lot of our conversations. Five may seem young to try and explain the realities of the disease to but...
  13. C

    When and how do I tell her?

    100% with Em on this one. Like Em, Sean has always known. We always took every opportunity to educate him and his brother about CF. In fact, it was usually his older brother that sparked a lot of our conversations. Five may seem young to try and explain the realities of the disease to but...
  14. C

    When and how do I tell her?

    100% with Em on this one. Like Em, Sean has always known. We always took every opportunity to educate him and his brother about CF. In fact, it was usually his older brother that sparked a lot of our conversations. Five may seem young to try and explain the realities of the disease to but...
  15. C

    When and how do I tell her?

    100% with Em on this one. Like Em, Sean has always known. We always took every opportunity to educate him and his brother about CF. In fact, it was usually his older brother that sparked a lot of our conversations. Five may seem young to try and explain the realities of the disease to but...
  16. C

    Traveling with Pulmozyme

    I was told that Pulmozyme and be stored outside of the fridge for up to 18 hours at room temp so if your worry is the transport time to CA then I'd say you're "ok". Not sure how the airlines feel about fridge packs/ice in your carry on. I suspect they're off limits. Once you get to the...
  17. C

    Traveling with Pulmozyme

    I was told that Pulmozyme and be stored outside of the fridge for up to 18 hours at room temp so if your worry is the transport time to CA then I'd say you're "ok". Not sure how the airlines feel about fridge packs/ice in your carry on. I suspect they're off limits. Once you get to the...
  18. C

    Traveling with Pulmozyme

    I was told that Pulmozyme and be stored outside of the fridge for up to 18 hours at room temp so if your worry is the transport time to CA then I'd say you're "ok". Not sure how the airlines feel about fridge packs/ice in your carry on. I suspect they're off limits. Once you get to the...
  19. C

    Traveling with Pulmozyme

    I was told that Pulmozyme and be stored outside of the fridge for up to 18 hours at room temp so if your worry is the transport time to CA then I'd say you're "ok". Not sure how the airlines feel about fridge packs/ice in your carry on. I suspect they're off limits. Once you get to the...
  20. C

    Traveling with Pulmozyme

    I was told that Pulmozyme and be stored outside of the fridge for up to 18 hours at room temp so if your worry is the transport time to CA then I'd say you're "ok". Not sure how the airlines feel about fridge packs/ice in your carry on. I suspect they're off limits. Once you get to the...
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