Search results

When I taught, I had a child in my class with CF. This was a private school, so a little smaller probably. Anyway, there is a max number of absences a child can have. You should know this number as you don't want to use them up on days other kids are sick. Do you feel comfortable with the...

Oops!!! Did your son ever receive iron by iv? Did they ever test you or other family members? (ferritin) mine was low as was my 18 month old daughters. We did not yet test my older son. We are starting to wonder if his bowel issues are really related or if it is a genetic thing?? Maybe we are...

Hi josette, I did think of a few more questions for you! First to answer you, our hematologist and GI are at the same hospital and have talked. In our case we started in GI, she referred us on the hem after scopes and everything looked normal. (Biopsies only showed lactose intolerance and...

Thank josette for all of your information!! I haven been trying to keep busy between appointments and results as I feel like I get so anxious and then let down! Since my first post, my son did get the genetic results back. He was negative on the 40 most common mutations in Caucasians. (That is...

Thanks Bill, I understand now!

Printer - We are in Michigan not Massachusetts. DMC Detroit, Michigan.

Thank you so much for the replies thus far! Printer - All of our Hematologist and GI appts are through DMC Detroit. When we had the Sweat Chloride test, we were sent to the specialty center, where everyone there was getting sweat tests! So I assume it was done through the CF center? I think I...

Hello, I am new to this site and my son is currently in the process of being tested for CF. Here is a brief history as we have a long story! :) I breastfed until 17 months, at 18 months my son caught Rotavirus. (we were living overseas and they did not vaccinate) After Rotavirus, we realized...

Hello, I am new to this site and my son is currently in the process of being tested for CF. Here is a brief history as we have a long story! :) I breastfed until 17 months, at 18 months my son caught Rotavirus. (we were living overseas and they did not vaccinate) After Rotavirus, we realized...