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jricci, Really glad to hear that you didn't have too much of a problem getting Kalydeco approved again. Hopefully getting it will never be a real problem. My last 84 day supply was filled on November 16th and will be eligible for refill on January 20th. Hopefully it will go as smoothly as...

As I've probably said before, after two years of no problems getting Kalydeco off-label, my first 3 month refill in 2016 was initially denied. However, my insurance did approve a 28 day supply to provide coverage during an appeal. Once the appeal paper work was submitted, the denial was...

It's usually taken me weeks after stopping the IV antibiotics before bouncing back

I have recently noticed that posts appearing on my PC when I'm signed in have not shown up on my iPhone when I'm not signed in.

This may be on the up and up - But it sounds questionable to me.

missme and others, I know it can be extremely frustrating contacting Vertex about Kalydeco (and probably Orkambi) if you are not taking it On-label. I’ve tried a number of times. They will not even discuss information that is public knowledge. As you mentioned, getting Kalydeco is not an...