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Grandson diagnosed with CF through Newborn Screening
My daughter was 11 years old before she was diagnosed. I would take her in on a weekly basis and tell the doctor something was not right with her. He would tell me that she had allergies and to give her Robitussin D. One day, I insisted she see an allergist. They sent me to Childrens...- suziesmom
- Post #15
- Forum: Newly Diagnosed
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cystic fibrosis and scoliosis
Wow. I never knew this could be caused from CF. My daughter (age 22) has a "hump" right at the bottom of her neck. Is this something I should have her checked for? suziesmom- suziesmom
- Post #11
- Forum: Teenagers and Young People
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cystic fibrosis and scoliosis
Wow. I never knew this could be caused from CF. My daughter (age 22) has a "hump" right at the bottom of her neck. Is this something I should have her checked for? suziesmom- suziesmom
- Post #12
- Forum: Teenagers and Young People
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Bloating
My daughter is 22 and was diagnosed @ age 11. Ever since she was about 15 yrs old, she has been either asked or congratulated about "being pregnant". She is not now nor has she ever been pregnant! She is incredibly depressed about it and asked last night about having an operation on her... -
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Bloating
My daughter is 22 and was diagnosed @ age 11. Ever since she was about 15 yrs old, she has been either asked or congratulated about "being pregnant". She is not now nor has she ever been pregnant! She is incredibly depressed about it and asked last night about having an operation on her... -
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two weeks on kalydeco!
What I want to know is, does anyone know if Kalydeco will work on any mutation? I have heard that it does but it has only been approved for one specific mutation? ANY info on this would be wonderful. I have only one child, aged 22 with CF. We know that one of her genes is the Delta 508 - the...- suziesmom
- Post #11
- Forum: CFTR Modulation and Gene Therapy Talk
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two weeks on kalydeco!
What I want to know is, does anyone know if Kalydeco will work on any mutation? I have heard that it does but it has only been approved for one specific mutation? ANY info on this would be wonderful. I have only one child, aged 22 with CF. We know that one of her genes is the Delta 508 - the...- suziesmom
- Post #12
- Forum: CFTR Modulation and Gene Therapy Talk
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Coughing judgment at the gym (or any public space)
This message is for "jbrandyn". I live about 30 miles SE of Seattle. My daughter has CF and I would be so thrilled to have her speak with you! Let me know if you are interested. Thanks! -
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Coughing judgment at the gym (or any public space)
This message is for "jbrandyn". I live about 30 miles SE of Seattle. My daughter has CF and I would be so thrilled to have her speak with you! Let me know if you are interested. Thanks! -
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Big advancement in the fight against cystic fibrosis
Hopefully someone on here can help me? When Kalydeco first came out and the media got wind of it, all of my family and friends were calling telling me about it. I was SO excited! When I took my daughter in to the CF clinic, they said it was only for one kind of mutation and Suzie does not... -
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Big advancement in the fight against cystic fibrosis
Hopefully someone on here can help me? When Kalydeco first came out and the media got wind of it, all of my family and friends were calling telling me about it. I was SO excited! When I took my daughter in to the CF clinic, they said it was only for one kind of mutation and Suzie does not... -
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Problems with Anxiety
Beautiful Soul! (And you ARE beautiful!) My daughter was diagnosed at 11 yrs old and is now 19. She had HORRIBLE TERRIBLE AWFUL anxiety problems.... that led to more problems until she was diagnosed also with bipolar disorder at age 15. I'm sure you do not have bipolar disorder, but it... -
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Problems with Anxiety
Beautiful Soul! (And you ARE beautiful!) My daughter was diagnosed at 11 yrs old and is now 19. She had HORRIBLE TERRIBLE AWFUL anxiety problems.... that led to more problems until she was diagnosed also with bipolar disorder at age 15. I'm sure you do not have bipolar disorder, but it... -
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Problems with Anxiety
Beautiful Soul! (And you ARE beautiful!) My daughter was diagnosed at 11 yrs old and is now 19. She had HORRIBLE TERRIBLE AWFUL anxiety problems.... that led to more problems until she was diagnosed also with bipolar disorder at age 15. I'm sure you do not have bipolar disorder, but it... -
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Problems with Anxiety
Beautiful Soul! (And you ARE beautiful!) My daughter was diagnosed at 11 yrs old and is now 19. She had HORRIBLE TERRIBLE AWFUL anxiety problems.... that led to more problems until she was diagnosed also with bipolar disorder at age 15. I'm sure you do not have bipolar disorder, but it... -
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Problems with Anxiety
Beautiful Soul! (And you ARE beautiful!) My daughter was diagnosed at 11 yrs old and is now 19. She had HORRIBLE TERRIBLE AWFUL anxiety problems.... that led to more problems until she was diagnosed also with bipolar disorder at age 15. I'm sure you do not have bipolar disorder, but it...