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Aha. Sinus infection. The bug causing the sinus infection and the resulting drainage typically drains into the lungs and causes coughing. It can cause an upper respiratory infection as well. I wouldn't wait. I would call them and potentially ask for an ENT to see him. They can even swab his...

Great thought, Kenna. This is what I love about cysticfibrosis.com. So many experienced and helpful souls.

Fantastic idea LL. I love this new perspective of an uncle to autistics. So if I have this right your suggestion is that his sensory system has been in effect overloaded by his CF issues - perhaps with the original respiratory infection? Many kids hyper react to new stimulus experienced by...

Well you do have a challenge, don't you Jshett. I can empathize. My guy is dyslexic and has ADHD, but wasn't diagnosed with those conditions until fairly recently. Which dx is the most challenging and time consuming is a toss-up! I suspect your son's autism takes a lot of your energy as...

That is a lot of antibiotics - which of course is most certain to be causing the diarrhea! The best approach for the diarrhea we have found is keeping him on a probiotic especially during antibiotic treatment. We use Culturelle, but there are many out there that others on this forum have used...

I must confess I found the video from Aerobika a little confusing. It shows cleaning by taking it apart and soaking in hot soapy water for 15 minutes, then rinsing and letting it air dry, putting it back together and apparently. . . . that's the end? First, please note that Aerobika does say...

Jshet22 - Even barely coughing doesn't mean it's not worthy of attention or treatment around my house. I view it as a warning - something is brewing and needs to addressed, the sooner the better. You said he hasn't been completely well since December. Was he treated when this started? Or was...

Prayers coming your way, AboveAll. Prayers he gets over this fast. Keep plugging away at it, one thing at a time. He'll get through it. You got this.

Interesting comments DanfromIL. Frankly, I didn't really pick up on the concept that the disparity in longevity was eliminated when the comparisons were isolated to women. Can you give me a quote on that? (That's not meant as a challenge to your premise, just a shortcut for me!) But, I'm...

What are you thinking hard about ghostwriter?

Kudos to you for caring enough and being resourceful enough to visit us with your concerns and questions. All that's been said already is insightful and helpful. I can add here that I am a bit confused by some of what your sons girlfriend reports. Does she live in the United States? There are...

Mom2girls - thanks for entrusting us with your story. I gather from what you're saying that your daughter is suspected of having PCD. My minimal understanding of PCD is that it is a problem with the cilia, similar to the problem experienced in cystic fibrosis. In reviewing the PCD site, I...

Thanks for the link. That helped a lot. I'm not sure why you would use the Aerobika with the nebulizer except for decrease in treatment time? Do you know if it's supposed to increase effectiveness in some way to use them together? We're suppose to use the vest with nebulized xopenex at the...

ToriMom - I have noticed that the Aerobika is often pictured as an intermediary between a nebulizer compressor and cup. I'm not sure how this works, since we haven't been instructed to try that, even though my guy nebulizes Xopenex (similar to Albuterol) during vesting and Tobi after vesting...

Mom2two. I don't honestly know the answer but I suggest you first of all talk with your RT. But let me ask you this. If you do any airway clearance, doesn't it make sense that PEP would be helpful too? I mean, it sounds like you're saying that if lung function is low, then air clearance of any...

We clean the Aerobika once a day - not after every treatment. First you take it apart and put it in soapy water and let it sit for 15 minutes. Then rinse it and then sterilize it. We use a Wabi baby bottle sterilizer. Weve never tried a Flutter so I can't compare the sensation for you. BUT...

Good point prabincr! In CF, airway clearance is a necessary fact of life. It is simply a way to help clear the lungs of the sticky mucous that plagues the CF lungs and causes damage and potential decline. There are several different methods that can be used. CFF.org has a nice concise listing...

Our CF Clinic received a grant to buy one for every patient and they distributed them free of charge. They are interesting little tools. My 11 year old was trained in its use and used it several times - he is ADHD and sensitive to many things. He found it "disconcerting" - because it worked...

Here's one of the links. . . . http://forums.cysticfibrosis.com/showthread.php/82466-Propel-Implant-for-Nasal-Polyps?highlight=Propel

Hi Kenna. My 11 year old has had numerous (three?) sinus surgeries so far. I think. I've lost count. The first one was inpatient and they admitted him for a few days before to get plenty of antibiotics in his system for protection. I was nervous about it and of course stayed with him...