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  1. J

    CF Culture Results

    Preliminary results are usually in in 72 hours. If something shows up, depending on what it is it can take a while to grow out, it took over six weeks for my MAC to culture out totally.. and less then that for the Mycobacteria Fortuium to grow, It took four months for the sensitivities to come...
  2. J

    CF Culture Results

    Preliminary results are usually in in 72 hours. If something shows up, depending on what it is it can take a while to grow out, it took over six weeks for my MAC to culture out totally.. and less then that for the Mycobacteria Fortuium to grow, It took four months for the sensitivities to come...
  3. J

    Thank You

    I am sorry, I am praying for you I don't know what else to say...
  4. J

    Thank You

    I am sorry, I am praying for you I don't know what else to say...
  5. J

    Thank You

    I am sorry, I am praying for you I don't know what else to say...
  6. J

    IM confused with diagnosis

    Thanks Guys, I do know that we consulted John's Hopkins when the second gene was identified and the doctor there, (can't remember his name) was not aware of this gene..... I am so frustrated, it is beyond words, the emotional roller coaster I was on, now I don't care, I just want to get...
  7. J

    IM confused with diagnosis

    Thanks Guys, I do know that we consulted John's Hopkins when the second gene was identified and the doctor there, (can't remember his name) was not aware of this gene..... I am so frustrated, it is beyond words, the emotional roller coaster I was on, now I don't care, I just want to get...
  8. J

    IM confused with diagnosis

    Thanks Guys, I do know that we consulted John's Hopkins when the second gene was identified and the doctor there, (can't remember his name) was not aware of this gene..... <br /> <br />I am so frustrated, it is beyond words, the emotional roller coaster I was on, now I don't care, I just want...
  9. J

    Housecleaning!

    I am an OCD cleaner, I hate clutter dust and dirt.. Last year my health took a turn and I have not recovered yet.... It drives me insane to have anything out of place, piles of paper etc. I can not afford a cleaning lady on a regular basis but I have one come every so often... I honestly...
  10. J

    Housecleaning!

    I am an OCD cleaner, I hate clutter dust and dirt.. Last year my health took a turn and I have not recovered yet.... It drives me insane to have anything out of place, piles of paper etc. I can not afford a cleaning lady on a regular basis but I have one come every so often... I honestly...
  11. J

    Housecleaning!

    I am an OCD cleaner, I hate clutter dust and dirt.. Last year my health took a turn and I have not recovered yet.... It drives me insane to have anything out of place, piles of paper etc. <br /> <br />I can not afford a cleaning lady on a regular basis but I have one come every so often... I...
  12. J

    IM confused with diagnosis

    Hey sorry I almost didn't see this... I have two genes one is Df508 and one gene has not been described yet, it is called Q1330E... there is not enough research done on that gene. My doctor that I was seeing at the time felt like my symptoms didn't add up with CF, he strongly felt that working...
  13. J

    IM confused with diagnosis

    Hey sorry I almost didn't see this... I have two genes one is Df508 and one gene has not been described yet, it is called Q1330E... there is not enough research done on that gene. My doctor that I was seeing at the time felt like my symptoms didn't add up with CF, he strongly felt that working...
  14. J

    IM confused with diagnosis

    Hey sorry I almost didn't see this... I have two genes one is Df508 and one gene has not been described yet, it is called Q1330E... there is not enough research done on that gene. <br /> <br />My doctor that I was seeing at the time felt like my symptoms didn't add up with CF, he strongly felt...
  15. J

    Need Advice Please

    Thank you so much!!!!! I am going to try the Iodine for sure. I also put some hydrocortisone cream over the area not covered currently which helped a lot too. What we are going to do for my medications because I am on several IV antibiotics as well as IV fluids several times a day (lots and...
  16. J

    Need Advice Please

    Thank you so much!!!!! I am going to try the Iodine for sure. I also put some hydrocortisone cream over the area not covered currently which helped a lot too. What we are going to do for my medications because I am on several IV antibiotics as well as IV fluids several times a day (lots and...
  17. J

    Need Advice Please

    Thank you so much!!!!! I am going to try the Iodine for sure. I also put some hydrocortisone cream over the area not covered currently which helped a lot too. <br /> <br />What we are going to do for my medications because I am on several IV antibiotics as well as IV fluids several times a day...
  18. J

    Need Advice Please

    Thanks Jane.. I am going to see if they can get the IV3000, I have a port too. I put some hydrocortisone on it last night which seems to have helped a little bit. I being one of the worst patients ever have been over using my arm carrying heavy things and so that has exacerbated the area as...
  19. J

    Need Advice Please

    Thanks Jane.. I am going to see if they can get the IV3000, I have a port too. I put some hydrocortisone on it last night which seems to have helped a little bit. I being one of the worst patients ever have been over using my arm carrying heavy things and so that has exacerbated the area as...
  20. J

    Need Advice Please

    Thanks Jane.. I am going to see if they can get the IV3000, I have a port too. I put some hydrocortisone on it last night which seems to have helped a little bit. <br /> <br />I being one of the worst patients ever have been over using my arm carrying heavy things and so that has exacerbated the...
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