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  1. C

    CF booty oil blowouts.

    Yeah, it happens to Sean once in a while. Fortunately he's been at home when it's happened. Not sure what he'll do when it happens at school. Thanks SeanDavis for making us laugh about it <img src="i/expressions/face-icon-small-happy.gif" border="0">
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    CF booty oil blowouts.

    Yeah, it happens to Sean once in a while. Fortunately he's been at home when it's happened. Not sure what he'll do when it happens at school. Thanks SeanDavis for making us laugh about it <img src="i/expressions/face-icon-small-happy.gif" border="0">
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    Can I ask a favor? Med. question

    Sean takes... Albuterol (Nebulized) - 2x's a day Pulmozyme - 1x a day Ultrase MT-20's - 3 with meals ADEK's Nasonex - 2 squirts each nostril once a day Flovent - 2 puffs once a day Singulair - 1 tablet at bedtime Rynatan - as needed
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    Can I ask a favor? Med. question

    Sean takes... Albuterol (Nebulized) - 2x's a day Pulmozyme - 1x a day Ultrase MT-20's - 3 with meals ADEK's Nasonex - 2 squirts each nostril once a day Flovent - 2 puffs once a day Singulair - 1 tablet at bedtime Rynatan - as needed
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    Medical Savings Account (investment type)???

    Here's a link with more info... <a target=new class=ftalternatingbarlinklarge href="http://www.opm.gov/hsa/hsa.asp">Health Care Savings Accounts</a>
  6. C

    Medical Savings Account (investment type)???

    Here's a link with more info... <a target=new class=ftalternatingbarlinklarge href="http://www.opm.gov/hsa/hsa.asp">Health Care Savings Accounts</a>
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    Medical Savings Account (investment type)???

    I understand and what we have now through our health care options at work is a Health Savings Account not a flexible spending account. As I said, we can contribute as much as we want there are no limits, the money is invested based on our elections (similar to a retirement account), and the...
  8. C

    Medical Savings Account (investment type)???

    I understand and what we have now through our health care options at work is a Health Savings Account not a flexible spending account. As I said, we can contribute as much as we want there are no limits, the money is invested based on our elections (similar to a retirement account), and the...
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    Growth hormone therapy

    Sean is currently participating in a study for growth hormone therapy. Unfortunately, he's in the group of kids not receiving the hormone but from what I understand the growth hormone therapy is really making a huge difference in the kids that are receiving the hormone shots. They are growing...
  10. C

    Growth hormone therapy

    Sean is currently participating in a study for growth hormone therapy. Unfortunately, he's in the group of kids not receiving the hormone but from what I understand the growth hormone therapy is really making a huge difference in the kids that are receiving the hormone shots. They are growing...
  11. C

    Medical Savings Account (investment type)???

    Yes, there is such a thing. I can choose it through my company's health insurance plan. It is not a traditional Health Care Savings Plan where you have to use the money each fiscal year but a Health Savings Account. Ours is managed by United Health Care.
  12. C

    Medical Savings Account (investment type)???

    Yes, there is such a thing. I can choose it through my company's health insurance plan. It is not a traditional Health Care Savings Plan where you have to use the money each fiscal year but a Health Savings Account. Ours is managed by United Health Care.
  13. C

    VEST/NEB STORAGE

    I like this question because Sean just got his vest and I too was curious what other people do for storage and ease of use. We've always kept Sean's nebulizer and meds in the kitchen. We've got a huge drawer that he can reach and he keeps everything in there. We do have an additional...
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    VEST/NEB STORAGE

    I like this question because Sean just got his vest and I too was curious what other people do for storage and ease of use. We've always kept Sean's nebulizer and meds in the kitchen. We've got a huge drawer that he can reach and he keeps everything in there. We do have an additional...
  15. C

    Get an amnio to know for sure?

    Hi Ted, Welcome to the site. When I was pregnant with Sean, I too had an abnormally high NT. My Dr. thought it could be because we had calculated my due date incorrectly (I guess the NT test is very sensitive to timing) and redid the test. It came out normal the second time. At the time, I...
  16. C

    Get an amnio to know for sure?

    Hi Ted, Welcome to the site. When I was pregnant with Sean, I too had an abnormally high NT. My Dr. thought it could be because we had calculated my due date incorrectly (I guess the NT test is very sensitive to timing) and redid the test. It came out normal the second time. At the time, I...
  17. C

    article

    It's mentioned on the CFF website... <a target=new class=ftalternatingbarlinklarge href="http://www.cff.org/home/index.cfm?ID=6080&blnShowBack=True&idContentType=767">Saline treatment</a> and <a target=new class=ftalternatingbarlinklarge...
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    ready for kidergarten??

    Hi Maggi, Sean too is an Aug. B-day and at the time went to a school with a Sept 1st cut off. When it came time for Kindergarten his school recommended that he try Begindergarten instead for the very reasons you cited (i.e. small, socially not ready, fine motor skills, etc) in spite of the...
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    HERE WE GO---UPDATED AND SAD :(

    RE:HERE WE GO :)!!!!!!!!!!!!!!!!!!!!! Congratulations, Julie (and Mark)!!! I'm so excited for you guys. I will keep you in my thoughts and prayers. Tell Mark not to worry. When I found out I was pregnant my husband and I didn't have a thing but it all worked out. Things really do have a...
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    cf centers

    Sean goes to Univ. of Michigan. We love everyone there <img src="i/expressions/heart.gif" border="0">
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