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Hi Madmax, I actually had 2 sweat tests that came out high=positive & did not receive a CF diagnosis. I know that hypothyroidism can cause a high result. (I have that but it is under control through medication.) At the end of the day, I don't really have any ongoing symptoms or health problems...

Here in Israel they don't like the vest (VEST) because it is too passive. We do CPT and use the accapella. There are physiotherapists who teach my kids the various breathing techniques. And nothing beats running & being active. You tube may have some instruction videos if you search CPT or Chest...

International Conference on Pediatric Chronic Diseases, Disability &Human Development International Conference on Pediatric Chronic Diseases, Disability and Human Development will be held in Jerusalem on 20-23 January, 2015. I just wanted to share this with anyone who might be interested in...

International Conference on Pediatric Chronic Diseases, Disability &Human Development International Conference on Pediatric Chronic Diseases, Disability and Human Development will be held in Jerusalem on 20-23 January, 2015. I just wanted to share this with anyone who might be interested in...

I don't really have weight issues with my son, but I give him a piece of halva every day. It is relatively healthy & high in calories & very yummy.:) I hope you get the right diagnosis. Not to scare you, but the sweat test isn't everything. My young daughter tested positive & she isn't even a...

I hope you get your answers. See if you can get to a REAL CF specialist and an accreditied CF center versus a "pulmonologist". And, yes, get the results of your sweat test, preferably in print. Even if you are in diagnostic limbo, many people get the same treatment as CFers because it works. My...

I am sorry to hear he is intubated, but I hope you see improvement & he is able to heal with the help of ICU. I found this description about Claire Wineland and her ventilator experience. She says she had about a 1% chance of survival. Please don't give up hope. "On April 13, 2010 after a...

Thanks! Yes, that history site is excellent! I remember when I first found it with my kids' diagnosis. It is totally the European approach, which fits how patients are treated here in Israel. I remember discovering Dr. Warwick's approach and how different it is. No one uses the vest here and...

When I heard the hypothyroid could throw off the test, I was all relieved. The CF specialist took the results more seriously because the condition is treated & under control. He did a second sweat test, PFTs (lung functions) and a sputum culture. I didn't have any strong symptoms, but with my...

I just wanted to add that I tested positive 2 times with the sweat test, but I don't have a load of symptoms & I do have hypothyroidism, which can throw the test off. I am a carrier too. Stranger than that, is my little daughter, who is NOT a carrier after double checking her genetics, testing...

Good luck & don't give up! For sure get a 2nd opinion! I remember my family dr telling me I couldn't be pregnant if I was nursing (that was my 2nd child) I dumped him like a hot potato!!

My son had a constant runny nose for YEARS. When he got diagnosed at 8, the doctor said he had nasal polyps and started treating him for that. I went to our ENT and he said NO polyps! Anyways, I am a real fan of specialists because they know their field WELL. We had a scare with my 6 year old...

Waiting anxiously to hear what happened...

We don't use a vest here, in Israel. We use the accapella & CPT. If she is 14, and lying about it, I think you should all discuss it with the clinic and find an alternative. I am in the middle of watching this excellent presentation...

Hi! I am actually posting this to help someone else. He is trying to sue whomever for medical negligence and asked me to ask the group if someone did a full genetic sequencing in 2005 or before. He just needs the results with the date - the name can be blackened out/erased. This can be done...

Hi! I am actually posting this to help someone else. He is trying to sue whomever for medical negligence and asked me to ask the group if someone did a full genetic sequencing in 2005 or before. He just needs the results with the date - the name can be blackened out/erased. This can be done...

"he said the sweat test remains the "gold standard" for checking for CF " Personally, I am not so impressed by that "gold standard" from my experiences. I tested positive, most probably due to carrier status and hypothyroidism. My 5 year old tested positive and she isn't even a carrier! The...

I am the same age & did some testing when my kids got diagnosed over 2 years ago. First of all, I think adults have higher positive results, in general. I tested positive, but then thought it didn't mean too much because I have hypothyroidism. The doctor still retested me and we did genetic...

Hi! My son is 10 and I have been searching for more ideas, also. Here in Israel, the therapists don't like the vest approach because it is so passive. I think the main thing is to find something that is active and FUN. We have turned to the trampoline and jumping rope as a couple of options...

Hey! 3849+10kb, C-T is one of our mutations also! I am so grateful my kids have this "milder" version and they have been diagnosed early on. Who knows how much damage there would have been until they would have been diagnosed, if not for the shrewd doctor who sent us to test my daughter?!