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I am also a fan!!!! I had never seen it until my last hospital admission, and they ran a Walking Dead marathon, then i got hooked!!!

Thank you guys for posting! I know i have seen previous posts from others who are on Off label Kalydeco, and I am collecting as much info as possible. I have DF508 and P67L mutations, and it's been Proven that Kalydeco has a great impact on these genotype. Vertex themselves, did an analysis on...

That's my question as well!! I have Medicare and am wondering what coverage from them is like as well!

Thank you for the information, i truly appreciate any that i can get! Vertex conducted a research and came out with an analysis/research paper showing that Kalydeco does in deed work on my mutations so there is proof that i can benefit so the CF team is trying to get me on Kalydeco but trying to...

Thank you SOOO much Jenny!!! I am trying to get approved for Kalydeco because it's been proven that it significantly helps on P67L mutation but its only FDA approved for the G551D so i want to know how others are getting approved!

To clarify, i am inquiring about those of you taking Off Label Kalydeco that do Not have the G551D mutation, but have another genotype and are approved for Kalydeco!! Thanks so much!!!

Hi! For those of you who are on Kalydeco or have a loved one on it, how did you get insurance to approve it for those of you getting it "Off -Label"? Please let me know, thank you kindly!!

Congratulations!!! Keep us posted on your progress and when you get to get out of hospital and go home!!!! Best of luck!!!

Nikki, I sent you a private message so just wanted you to know it was me Talk soon

I get 7% Hypertonic Saline and costs me $40 per month

Bloggymom: What antibiotics are you on to treat the MAC? i have been trying to get rid of it for a year now. Its been a hard one to treat!!!

Does anybody have Df508 and P67L mutations?

AC/DC - Ride On AC/DC - You Shook Me All Night Long ~~~dedicated to my Vest AC/DC - Hells Bells ~~ like the beat Queen - I Want To Break Free LeAnn Womack - I Hope You Dance

My thoughts & prayers go out to his family! Breathe easy little guy, you gained your wings! Erica

Hi, Have they done an actual Gall Bladder UltraSound? This happened to me, and they kept chalking it up to constipation and finally after 10 months of this, it ended up that my gallbladder was making me so sick.