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Thank you! My sons been waking up with a sore throut but when I ask where it hurts he points lower towards the bottom of his throut. When we see the ent he always says his throut looks fine. Someone said it could be hs lungs and that we might need to pound his chest each morning. Is this...

Thank you! My sons been waking up with a sore throut but when I ask where it hurts he points lower towards the bottom of his throut. When we see the ent he always says his throut looks fine. Someone said it could be hs lungs and that we might need to pound his chest each morning. Is this...

Thank you! My sons been waking up with a sore throut but when I ask where it hurts he points lower towards the bottom of his throut. When we see the ent he always says his throut looks fine. Someone said it could be hs lungs and that we might need to pound his chest each morning. Is this...

2nd sweat test came back 26. What the heck. Now we are really confused. Not sure if he has cf. Waiting for ambrey results. In the meantime we are in limbo. He has been really tired lately. Not acting like his typical self.

2nd sweat test came back 26. What the heck. Now we are really confused. Not sure if he has cf. Waiting for ambrey results. In the meantime we are in limbo. He has been really tired lately. Not acting like his typical self.

2nd sweat test came back 26. What the heck. Now we are really confused. Not sure if he has cf. Waiting for ambrey results. In the meantime we are in limbo. He has been really tired lately. Not acting like his typical self.

Karen, yes they one about MRSA he had a nasal swab that showed it. But he has been treated aggresively for it so they said it was ok to bring him in. They wanted to see him right away since we had just found out about cf but hadn't been told anything else. His ent has reswabed for MRSA to see...

Karen, yes they one about MRSA he had a nasal swab that showed it. But he has been treated aggresively for it so they said it was ok to bring him in. They wanted to see him right away since we had just found out about cf but hadn't been told anything else. His ent has reswabed for MRSA to see...

Karen, yes they one about MRSA he had a nasal swab that showed it. But he has been treated aggresively for it so they said it was ok to bring him in. They wanted to see him right away since we had just found out about cf but hadn't been told anything else. His ent has reswabed for MRSA to see...

So they are repeating the sweat test so I don't know if they have actuall diagnosed him with it. I'm driving myself crazy now with every little cough, loose stool, stomach ach. It's like I'm waiting for him to start falling apart. They don't have him on any meds. And I'm trying to tell my self...

So they are repeating the sweat test so I don't know if they have actuall diagnosed him with it. I'm driving myself crazy now with every little cough, loose stool, stomach ach. It's like I'm waiting for him to start falling apart. They don't have him on any meds. And I'm trying to tell my self...

So they are repeating the sweat test so I don't know if they have actuall diagnosed him with it. I'm driving myself crazy now with every little cough, loose stool, stomach ach. It's like I'm waiting for him to start falling apart. They don't have him on any meds. And I'm trying to tell my self...

Karen, you are right we loved Jill and Julia. She did tell us about the support group so we will going to those. It was wonderful to see all the drs at once and they come to you. My son had the room all set up with his coloring books, DS, and card games. As the drs came in to talk my son was...

Karen, you are right we loved Jill and Julia. She did tell us about the support group so we will going to those. It was wonderful to see all the drs at once and they come to you. My son had the room all set up with his coloring books, DS, and card games. As the drs came in to talk my son was...

Karen, you are right we loved Jill and Julia. She did tell us about the support group so we will going to those. It was wonderful to see all the drs at once and they come to you. My son had the room all set up with his coloring books, DS, and card games. As the drs came in to talk my son was...

Well four hours later we are done at the clinic. Wow, we met some wonderful drs, nurses, and social worker. They were very patient with us. I felt very prepared thanks to everyone here's good advice. So they said Tyler looks A typical for CF. His first lung test of blowing into the tube was...

Well four hours later we are done at the clinic. Wow, we met some wonderful drs, nurses, and social worker. They were very patient with us. I felt very prepared thanks to everyone here's good advice. So they said Tyler looks A typical for CF. His first lung test of blowing into the tube was...

Well four hours later we are done at the clinic. Wow, we met some wonderful drs, nurses, and social worker. They were very patient with us. I felt very prepared thanks to everyone here's good advice. <br /> <br />So they said Tyler looks A typical for CF. His first lung test of blowing into the...

Welshwitch, glad to hear you are doing well! It's to know there's a long life ahead for my little guy. Thanks for sharing your story.

Welshwitch, glad to hear you are doing well! It's to know there's a long life ahead for my little guy. Thanks for sharing your story.