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Thank you for all who replied! We are just taking it day be day and continuing to do the same treatments as we have been. I asked about SDS and PCD... was told that those were already thought about... Antonette - I here you on the sickness, we are lucky that he hasn't been hospitalized yet...

Thank you for all who replied! We are just taking it day be day and continuing to do the same treatments as we have been. I asked about SDS and PCD... was told that those were already thought about... Antonette - I here you on the sickness, we are lucky that he hasn't been hospitalized yet...

Thank you for all who replied! We are just taking it day be day and continuing to do the same treatments as we have been. I asked about SDS and PCD... was told that those were already thought about... <br /> <br />Antonette - I here you on the sickness, we are lucky that he hasn't been...

Thank you Heather! Luckily, the DR we are seeing is a CF specialist, and is awesome! He has been working with us trying to rule out everything else we can. I will look into those other diseases and see what the diagnostic testing is... Since we started on this journey when he was 5mos old I...

Thank you Heather! Luckily, the DR we are seeing is a CF specialist, and is awesome! He has been working with us trying to rule out everything else we can. I will look into those other diseases and see what the diagnostic testing is... Since we started on this journey when he was 5mos old I...

Thank you Heather! Luckily, the DR we are seeing is a CF specialist, and is awesome! He has been working with us trying to rule out everything else we can. I will look into those other diseases and see what the diagnostic testing is... Since we started on this journey when he was 5mos old I...

Hi, I just joined this forum hoping to find some answers as well as support. My almost 2yr old has been unofficially diagnosed with atypical CF by his pulmonologist. He has had the full genetic testing done by Ambry; they cannot find any mutations. He had a positive sweat test and has finger...

Hi, I just joined this forum hoping to find some answers as well as support. My almost 2yr old has been unofficially diagnosed with atypical CF by his pulmonologist. He has had the full genetic testing done by Ambry; they cannot find any mutations. He had a positive sweat test and has finger...

Hi, I just joined this forum hoping to find some answers as well as support. My almost 2yr old has been unofficially diagnosed with atypical CF by his pulmonologist. He has had the full genetic testing done by Ambry; they cannot find any mutations. He had a positive sweat test and has finger...