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    Question about TOBI(tobramycin)

    how long should tobi course be continued if it is started once? it is said to continue the medicine if the bacterias r dead and even if you feel ok.I am a mother and my daughter is 7 months old so she can't tell how is she feeling after taking Tobi
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    Question about TOBI(tobramycin)

    I have also heard that TOBI is not for children too if anyone here could tell how old you were when u got your first Tobi therapy or how much old your child was when he needed Tobi
  3. S

    Question about TOBI(tobramycin)

    Do you add normal saline with your tobi?or inhale it without N/S
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    Starting on night oxygen

    If he has no objection on your having CF then what else could be a big deal? He is a great man and treat him like one because there are many cf carrier couples who left their patrners after having cf child(men mostly)so I think you r very lucky don't worry about the mask and oxygen its all right...
  5. S

    Question about TOBI(tobramycin)

    Yes its ampule.
  6. S

    Question about TOBI(tobramycin)

    no its not packaged like u mentioned. it has to be broken to get it opened and once its opened it can't be closed
  7. S

    Question about TOBI(tobramycin)

    Its comes in glass bottle as the solution of the injection comes and the top of the glass bottle must be broken with something as doctors break the injection bottle then take solution in the syringe.
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    Question about TOBI(tobramycin)

    <span style="font-family: comic sans ms,sans-serif; font-size: medium;"><span style="color: #800080;">hello <span style="font-family: comic sans ms,sans-serif; font-size: medium;"><span style="color: #800080;">My daughter (8months) got pseudomonas aeruginosa and doctor suggested Nebcin...
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    g551d mutations on Kalydeco

    Can anyone tell how to measure FEV1 and what is mean by it
  10. S

    neb machine

    My daughter is almost 8 months old I have bought 2 nabulizer machines for her one is of Micelfluss and another is of Automyzer.I give her nabs from 1 and then after 5-10 min I connect it to another one so the machines stay cool and don't get extra burden and get burned.its working fine till now.
  11. S

    how tall are you?how much do you weigh?

    Hi my daughter is almost 8 months she is 61cm tall and 4.5kg weight
  12. S

    Tips to keep viral throat cough from

    My daughter is coughing very much recently she got throat infection dr advised to increase nabs she added ventolin clinil and HTS 3% and antibiotic Zetro. Its been 5 days and she is feeling better thank GOD!
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    Advice some food for my 6 months old cf daughter

    @forever dance I see my daughter and your baby have same mutations and are almost same age how much weight your baby has right now? My girl is 7 months and 15 days old and she is 4.5 kg right now.
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    Pulmozyme in infant

    7% saline given to 6 months old is very rare to me my daughter was 3 months old when she was admitted to hospital for lungs issues and she was given 3% saline 3 times a day with different nebulizer medicine.I sometimes give her 3%saline when the secretions r very thick
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    Book Recommendations for new CF Parent

    What r u doing to remove thick mucus from child's lung.Has ur doctor suggested suctioning or some tablets plz share
  16. S

    Partner's son has cf?? looking for advice

    If you want to marry him or have a family with him then u should get your cf carrier testing.have u done that?
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    Book Recommendations for new CF Parent

    Momafirst is right jessica things u can know from people who r in the same situation like u can't be found in books so stay in touch join face book group and learn from other people's experience of CF
  18. S

    Welcome Ambry Genetics

    Hi Steve I was wondering if could help me know the answer this questions Is it possible for a single person to be a carrier of both thalassemia and cystic fibrosis at the same time. Plz help me I have been asking this question but no bodys answer seems to satisfy.
  19. S

    MRSA

    What do u mean by. MRSA
  20. S

    Any family from PAKISTAN here?

    hello just wondering if any one on this site is from pakistan if you are plz write.
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