how long should tobi course be continued if it is started once? it is said to continue the medicine if the bacterias r dead and even if you feel ok.I am a mother and my daughter is 7 months old so she can't tell how is she feeling after taking Tobi
I have also heard that TOBI is not for children too if anyone here could tell how old you were when u got your first Tobi therapy or how much old your child was when he needed Tobi
If he has no objection on your having CF then what else could be a big deal? He is a great man and treat him like one because there are many cf carrier couples who left their patrners after having cf child(men mostly)so I think you r very lucky don't worry about the mask and oxygen its all right...
Its comes in glass bottle as the solution of the injection comes and the top of the glass bottle must be broken with something as doctors break the injection bottle then take solution in the syringe.
My daughter is almost 8 months old I have bought 2 nabulizer machines for her one is of Micelfluss and another is of Automyzer.I give her nabs from 1 and then after 5-10 min I connect it to another one so the machines stay cool and don't get extra burden and get burned.its working fine till now.
My daughter is coughing very much recently she got throat infection dr advised to increase nabs she added ventolin clinil and HTS 3% and antibiotic Zetro. Its been 5 days and she is feeling better thank GOD!
@forever dance I see my daughter and your baby have same mutations and are almost same age how much weight your baby has right now?
My girl is 7 months and 15 days old and she is 4.5 kg right now.
7% saline given to 6 months old is very rare to me my daughter was 3 months old when she was admitted to hospital for lungs issues and she was given 3% saline 3 times a day with different nebulizer medicine.I sometimes give her 3%saline when the secretions r very thick
Momafirst is right jessica things u can know from people who r in the same situation like u can't be found in books so stay in touch join face book group and learn from other people's experience of CF
Hi Steve I was wondering if could help me know the answer this questions
Is it possible for a single person to be a carrier of both thalassemia and cystic fibrosis at the same time.
Plz help me I have been asking this question but no bodys answer seems to satisfy.
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