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What exactly do your need your doctor to do. If you need a referral for a pulmonologist maybe you can ask since you have repeated infections and not mention the CF possibility. Recently I took my daughter to a geneticist for a non-CF issue and realized the PhD geneticist that I spoke to before...

My daughter had quest largest panel including deletion w and duplications and I had amber largest panel including deletions and duplications. Is it different to have have gene sequencing? Does gene sequencing look for all mutations verse specific mutations in the panel?

My daughter has a 504 plan and I highly recommend it. She is also gifted by IQ and excellerated 2 grades in math before her health had a significant impact on her school work. She is 13th and in 8th and 10th grade middle school half day and high school half day. One accommodation she has...

How does a person get DNA sequencing done? My understanding is this tests for all mutations even if the consequence of the mutation is unknown. Is this what the full Quest testing including duplications and deletions does? Is this what Ambry's full testing including deletions and duplications...

I sent you a pm please let me know if you get it.

I looked on the Walmart website today and they no longer have the free antibiotic program listed. Instead they have a long list of $4 prescriptions. It is worth a look, but not specific to CF.

Happy birthday. You are an inspiration to all:)))

Yes we use mail order for all maintanence meds and our cost significantly decreased for medicine. Thank you for helping ease this transition. I am worried about hidden costs. I did notice the price went up whej I filled antibiotics this week. I am going to call walmart about the fre...

Thank you for the tip about lifetime membership. Did you find anything not covered as a retiree that was a covered service on Tricare Prime. So far I see hearing aides are covered on Prime and not on Tricare reserve select. Of course I have a 25 on all frequencies and 26 or greater loss is...

Don't blame yourself. At 16 no one is thinking about a long term relationship and it sounds like when you realized it would be long term you spoke up. I am a late diagnosis age 35 and I have been married for over 14 years and my spouse is having a very difficult time with it. The divorce rate...

Did Quest or Ambry do Justin's genetic testing?

I don't know about any connection between red wine and sinus problems, but I have to go to the ENT Friday and I'm pretty sure sinus surgery is in my near future, so I really appreciate the happy thought about drinking red wine being a motivator for the surgery:). I need any happy thought right.

Thank you my husband is an officer and already a MOAA member. I called and they will even waive the pre existing conditions clause if we add the supplement within 30 days of switching Tricare Prime to Tricare Reserve Select. It looks like they will cover my portion of my vest. Thanks so...

Amber thanks for replying. Did you have a sudden hearing loss or was the change gradual?

Your ENT explanation is really interesting. Do you know if your child had absent or elevated middle ear muscle reflex. (MEMR) test.

Does anyone know if absent middle ear muscle reflex is common for CF or from ototoxic medicine. My daughter has absent middle ear muscle reflex, but hears the beep test perfectly. I was wondering if anyone else has this?

I think my hearing has gotten worse recently. What are the causes of hearing loss with CF? I know certain antibiotics are ototoxic. What about Azythromycin 3 days weekly can that cause hearing loss? Can sinus infections cause hearing loss without ear pain or ear infection? Is it likely...

Beleache and Welshwitch, Thanks for posting. I did have CT scan and I have under developed sinuses. I have the blockages in the hardest to get to sinuses. I have done sinus rinses for years with hypertonic saline and antibiotic in the rinse. I did have the scope. I will ask for cultures to...

Thank you for posting I will ask my social worker at CF clinic.

I was recently diagnosed with CF as an adult and I have seen ENTs over the years for chronic sinusitis and repeats infections. My Cf pulmonologist referred me to the ENT that many of the other CF patients see. What should expect at this appointment. I have a horrible fear of the unknown. Is...