Search results

  1. B

    Not sure what to do....

    We have the Hill Rom Vest and I believe all 3 companies work the same way. As the child grows the machine iteself stays the same just the Vest size grows. We were told that new vests as a person grows are free as well as replacement parts such as hoses. We have not needed a new vest size yet...
  2. B

    Hillrom105 vest

    We have the Hillrom 105 also. As far as setting it for 25 minutes and it goes for 30 we have my daughter's set for 4 five minute sessions with coughing time programmed in between. After the 4rth session it does pause for coughing then starts back up for about 1 minute. As far as the light...
  3. B

    Hillrom105 vest

    We have the Hillrom 105 also. As far as setting it for 25 minutes and it goes for 30 we have my daughter's set for 4 five minute sessions with coughing time programmed in between. After the 4rth session it does pause for coughing then starts back up for about 1 minute. As far as the light...
  4. B

    Hillrom105 vest

    We have the Hillrom 105 also. As far as setting it for 25 minutes and it goes for 30 we have my daughter's set for 4 five minute sessions with coughing time programmed in between. After the 4rth session it does pause for coughing then starts back up for about 1 minute. As far as the light...
  5. B

    Suspected CF-looking for information

    I just wanted to let you know that you are not alone in the diagnostic limbo. Christmas Eve will be a full year since CF was suggested (for the 3rd time in her life) and we still have no definate diagnosis for my daughter. You are not alone. I would ask for the full genetic testing. As for...
  6. B

    Suspected CF-looking for information

    I just wanted to let you know that you are not alone in the diagnostic limbo. Christmas Eve will be a full year since CF was suggested (for the 3rd time in her life) and we still have no definate diagnosis for my daughter. You are not alone. I would ask for the full genetic testing. As for...
  7. B

    Suspected CF-looking for information

    I just wanted to let you know that you are not alone in the diagnostic limbo. Christmas Eve will be a full year since CF was suggested (for the 3rd time in her life) and we still have no definate diagnosis for my daughter. You are not alone. I would ask for the full genetic testing. As for...
  8. B

    Atypical CF

    I sent you a private message.
  9. B

    Atypical CF

    I sent you a private message.
  10. B

    Atypical CF

    I sent you a private message.
  11. B

    Atypical CF

    I sent you a private message.
  12. B

    Atypical CF

    I sent you a private message.
  13. B

    Atypical CF

    I sent you a private message.
  14. B

    Welcome Ambry Genetics

    Steven (Ambry) <P><BR></P> <P><FONT color=#000000 face=Verdana>Steve</FONT></P> <P><FONT color=#000000 face=Verdana>I think I understand the recessive inheritance of the genetic mutations. I am wondering about the variants. I have one daughter tested by Ambry and a 5T variant was found. She has...
  15. B

    You know you're a CF mom\dad\parent when......

    I assume loving cucumber was just because I cringe at every bite my daughter takes of it. One more bite with no fat.
  16. B

    You know you're a CF mom\dad\parent when......

    I assume loving cucumber was just because I cringe at every bite my daughter takes of it. One more bite with no fat.
  17. B

    You know you're a CF mom\dad\parent when......

    I assume loving cucumber was just because I cringe at every bite my daughter takes of it. One more bite with no fat.
  18. B

    You know you're a CF mom\dad\parent when......

    You don't know how to explain why you are over weight and your child is so excited about the"treat" AKA cucumber being served at the neighbor's party. Then you are not sure how to explain why your child politely declined the icecream dessert instead asking if there was more cucumber left.
  19. B

    You know you're a CF mom\dad\parent when......

    You don't know how to explain why you are over weight and your child is so excited about the"treat" AKA cucumber being served at the neighbor's party. Then you are not sure how to explain why your child politely declined the icecream dessert instead asking if there was more cucumber left.
  20. B

    You know you're a CF mom\dad\parent when......

    You don't know how to explain why you are over weight and your child is so excited about the"treat" AKA cucumber being served at the neighbor's party. Then you are not sure how to explain why your child politely declined the icecream dessert instead asking if there was more cucumber left.
Top